Megan's Addison's Treatment

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24 donors
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$2,150 raised of $5K

Megan's Addison's Treatment

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Anyone who knows our sister Megan would tell you she has a heart of gold and is one of the sweetest, most generous people they know. It's true! One could be so lucky to have her be their nurse if found in the hospital. She  gives and cares and works tirelessly and often thanklessly for others, even at her own expense. Being a natural caregiver, however, it's really hard for her to accept that same care from others; much less ask for it. And that's why we, her brothers and sisters, are putting it out there! 
Right now, Megan could really use some support, in many forms, but especially with some medical costs. 

Several years ago Megan was diagnosed with a very rare and debilitating disease called Addison's. This is a life-long disease and can be life threatening if not treated and regulated. (And indeed, Megan has had several serious "crashes" where we realized the gravity of this).  Never heard of it? Join the club! Here is some info: Addison's Disease-Mayo Clinic  Many doctor's aren't even familiar with this and so you can imagine the hoops and the tests, misdiagnoses; it's been a rollercoaster for her and her medical team to figure out what was wrong. We, her family, along with her supportive boyfriend, Jacob, and a few close friends, have watched and supported Megan for a few years now as she dealt with weeks of non-stop vomiting, fainting, debilitating fatigue, and headaches. She's been hospitalized for weeks at a time. She's had to change jobs, go down to part-time. She's had to deal with steroids and hormones, injection pain,  weight loss/gain/loss and other side effects. All the while, trying to keep her chin up, stay positive, and never giving up. 

Megan has had to become an expert on her care and research available treatment/management options. Since this is such a rare disease, there is not as much out there compared to other diseases. She has learned of a very promising option however that has been successful in other countries/studies. Essentially, it works like an insulin pump to regularly provide needed hormones to regulate her body. Currently she has to guess what her body needs and take painful injections. This pump could help her live a more normal life. Insurance has rejected to cover it however bc she is not diabetic. (no kidding?!) And so now she is needing to educate the insurance company on scientific research and best care and has written a very heartfelt appeal. Knowing how this process typically goes, we are not waiting for her to receive mercy/coverage from the insurance company. We are wanting to help raise both awareness and money for her to get this pump now, regardless. 

Megan is not yet aware that we have started this campaign for her. She is humble and proud and as stated above, she will give until she drops but has a hard time receiving. But this is love, this is karma, coming back to her in the way she has given to so many. Let's bless her with love, prayers, advocacy in issues of healthcare in our country, donations, and messages of support. (I think she will forgive us!)

Love and Thanks!

Co-organizers3

Julie Klosterman
Organizer
Longmont, CO
Allison Sinning
Co-organizer
Mark Klosterman
Co-organizer
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