
Help Meg fund life changing surgery
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Hi, I’m Meg. I’m 18 and last year was diagnosed with severe gastroparesis, likely to be caused by my genetic connective tissue disorder, ehlers danlos syndrome. I was, and continue to be, mistreated by the local nhs gastro team, being gaslit into thinking it was psychological. After a very long time of severe illness and 3 daily admissions in critical state, I was finally given an NJ (naso-jejunal) tube. This is a feeding tube that goes through my nose and into my small intestine to give me my nutrition. I need this as my stomach is essentially paralysed, causing extreme pain, nausea and vomiting whenever I try to eat. I have now been NJ fed for 6 months, and have seen my nhs gastro who has no plans on moving me to a surgical tube, just wants to keep waiting. However, every time I vomit, my tube risks getting dislodged, I often have to have it replaced, yet they can only get them up one nostril, causing me a lot of pain, discomfort and headaches. I have now found a private specialist in gastroparesis, who can help me and place a surgical tube in my abdomen, giving me lots of freedom and a better quality of life. As well as giving me my face back, a surgical tube will give me the ability to drain my stomach contents, meaning I don’t have to vomit constantly, and will ultimately be life changing. I would be so so grateful if you could help support me towards my goal, so that I can have an improved quality of life, allowing me to fulfill my dreams of studying medicine so that one day I can help others like me. Thank you so much,
Meg xx
Organizer

Meg Smith-Emes
Organizer
England