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Support for Ambrose

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Ambrose has just turned 18 years old and has begun losing vision as a result of Leber’s Hereditary Optic Neuropathy (LHON). Within a week he had gone from normal vision to losing the majority of vision in one eye; he is expected to lose sight in his other eye within the coming weeks. LHON is a genetic condition which has similarly affected the sight of 3 of 5 of Ambrose’ brothers: Fabian (at age 18), Augustine (at age 14) and Clement (at age 10).

LHON is an inherited metabolic disease caused by mitocondrial DNA mutations of which there is no known cure however there has been some research to suggest Idebenone may be beneficial.

The family of 9 children (of which Ambrose is the second youngest) is under increased financial strain as a result and it will be some months before he is able to receive support.

Ambrose is doing the best he can to adapt to this difficult situation.
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    Organizer

    Catherine Bub
    Organizer
    Petrie Terrace, QLD

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