Medical test's for Darin
Donation protected
Hi, my name is Karen, I'm Darin's wife. This is his story....
Husband, father, best friend and teacher. Darin has given it all, his whole life, to family, friends, work and most importantly, to God. He pours every ounce of himself into making sure his family is taken care of. But in July of 2015, his life took a turn; he was diagnosed with lung disease. Through this past year, he has also been battling constant sinus infections as to which the Dr.'s could not figure out why. They got so bad these past months that he went and had a nasal culture done..... It came back with a rare bacteria that only two antibiotics could kill it. Weeks later, he got another infection that came back with yet another deadlier bacteria than the first one, and now, after weeks of antibiotics, these bacteria turned into the most deadly which there are no antibiotics that will kill it.
This past October, Darin had the approval through his insurance to see a Pulmonary ILD (Interstitial Lung Disease) Dr. at USC Keck medical center who specializes in these types of diseases. This Dr. listened with great care and told Darin, with all his symptoms (CT scans, lung disease, sinuses infections, and various other problems) its more than likely you have adult on-set cystic fibrosis!!! We thought this was something one was born with and diagnosed as a child, with a short life span; it affects the lungs, intestinal tract, liver, pancreas, sinuses and heart. She explained how rare it is, but new studies are showing people can have it and not know it, they live their whole life, and then as an adult, it rears its ugly head. Darin’s started with intestinal problems and escalated into his lungs and sinuses now his heart is being affected.
So here is where you all come in..... Darin's medical facility has denied him to get testing done through USC and all his Dr.'s here have never even heard of this and not sure if they can even test for it. So we are looking for funds to pay for the testing ourselves, down at USC. These are very expensive tests and we need help paying for them. He needs these done right away so he can get on the correct medications if he does have it.
Darin and I will not "grow old together" as his diseases will take his life before that could happen. He is only 55 years old and should be enjoying life as we know it.
This would mean so much not only to Darin and I as his quality of life just seems to be getting worse daily, but to all those other people out there suffering the same way yet not understanding why. Cystic fibrosis is often misdiagnosed as pulmonary fibrosis or emphysema, because only 30,000 people in the United States have it and 70,000 people worldwide have it. We hope this should raise awareness that this deadly disease could possibly be lurking in you too. There are only 5 places in California that are qualified to test for it genetically, so therefore most Dr.’s have never see it.
Thank you in advance for your compassion and donation.
Darin and Karen
Husband, father, best friend and teacher. Darin has given it all, his whole life, to family, friends, work and most importantly, to God. He pours every ounce of himself into making sure his family is taken care of. But in July of 2015, his life took a turn; he was diagnosed with lung disease. Through this past year, he has also been battling constant sinus infections as to which the Dr.'s could not figure out why. They got so bad these past months that he went and had a nasal culture done..... It came back with a rare bacteria that only two antibiotics could kill it. Weeks later, he got another infection that came back with yet another deadlier bacteria than the first one, and now, after weeks of antibiotics, these bacteria turned into the most deadly which there are no antibiotics that will kill it.
This past October, Darin had the approval through his insurance to see a Pulmonary ILD (Interstitial Lung Disease) Dr. at USC Keck medical center who specializes in these types of diseases. This Dr. listened with great care and told Darin, with all his symptoms (CT scans, lung disease, sinuses infections, and various other problems) its more than likely you have adult on-set cystic fibrosis!!! We thought this was something one was born with and diagnosed as a child, with a short life span; it affects the lungs, intestinal tract, liver, pancreas, sinuses and heart. She explained how rare it is, but new studies are showing people can have it and not know it, they live their whole life, and then as an adult, it rears its ugly head. Darin’s started with intestinal problems and escalated into his lungs and sinuses now his heart is being affected.
So here is where you all come in..... Darin's medical facility has denied him to get testing done through USC and all his Dr.'s here have never even heard of this and not sure if they can even test for it. So we are looking for funds to pay for the testing ourselves, down at USC. These are very expensive tests and we need help paying for them. He needs these done right away so he can get on the correct medications if he does have it.
Darin and I will not "grow old together" as his diseases will take his life before that could happen. He is only 55 years old and should be enjoying life as we know it.
This would mean so much not only to Darin and I as his quality of life just seems to be getting worse daily, but to all those other people out there suffering the same way yet not understanding why. Cystic fibrosis is often misdiagnosed as pulmonary fibrosis or emphysema, because only 30,000 people in the United States have it and 70,000 people worldwide have it. We hope this should raise awareness that this deadly disease could possibly be lurking in you too. There are only 5 places in California that are qualified to test for it genetically, so therefore most Dr.’s have never see it.
Thank you in advance for your compassion and donation.
Darin and Karen
Organizer
Karen Blaeholder
Organizer
Bakersfield, CA