Medical testing for Egans

Kiera Egan turns 15 next month, but instead of getting ready to get her driver’s permit, she is having to step back from a vibrant girl’s teenage life while her parents work hard to solve a mystery.

In January 2023, Kiera began having seizures for no discernible reason. During 3 harrowing days, Kiera had 3 different episodes, each more extreme than the previous, that led to 3 different ambulance rides to 3 different hospitals…The 3rd resulting in an epileptic seizure and she was non-responsive. A week later was another seizure at school that led to yet another ambulance ride to another hospital.

After an MRI, various blood and urine tests, and an EKG, she keeps getting sent home with NO answers.

Those who know and love this vibrant girl recognize the impact it is having on her life in every way possible- from not being able to be the active gymnast she is, to not being able to go to school regularly, to missing out on outings in case she has another daily seizure.

While we wait for her appointment with the neurosurgeon and an EEG, we want to follow up on a lead that one test revealed- the potential of Lyme disease and two co-infections. To get the test that will provide the accurate results requires not the standard test given in a traditional setting, but the IGenix test which has a higher accuracy rate. Insurance does not cover this test.

We want to help provide answers for the Egans and ask for your help in getting Kiera and her mom, Amanda, tested. (Although not recognized in the USA, other countries view Lyme as given to a child via “vertical transmission”- this would potentially answer many questions Amanda has regarding her health as she has many Lyme-like symptoms, and would explain why and how Kiera got Lyme).

Please consider donating so we can get Kiera tested to either rule out Lyme as the mysterious cause of her seizures, or to solve the mystery and help confirm.