Support us in getting help for Oliver

Please meet Oliver, let me tell you about him.

Oliver needs to go to Seattle or Canada for assessment, testing and possible treatment with a specialised Paediatric Cardiologist team. (These are the only 2 places who have offered us help)

Olivers heart is suffering from extreme heart rate changes, in any given day, his heart rate will fluctuate between 50bpm to 200bpm. But on occasions, it has gone over 200 and up to 245bpm. This is unsafe for an 11 year olds heart. Structurally at this stage, his heart is fine. With this going on, it causes him to have chest pain, shortness of breath, fatigue, dizziness, fainting and more. He is struggling mentally now with it all too as it’s starting to control his life more and to hear him say “I’m not okay, by Jelly Roll” is his song and how he feels, isnt the best feeling for a mother.

The Drs here in Australia from West coast to East coast have all said “we just dont know what to do next, take him home and let him rest and bring him back if he gets worse or we can start him on clexane (a needle to the belly to thin the blood) which means, no sports, no physical activities due to the risks of bleeding internally”.

This is not a life for an active 11 year old boy.

We have found cardiology professors in Seattle and Canada who have said, they would love to meet Oliver and help him with a quality of life. They have talked about the options we could have from a heart medication to control the rhythm or possible pacemakers (last resort),

Oliver has had seizures for most of his life, which are medication resistant. We have been almost 2 years seizure free and thought everything was going to start settling down. Sadly on Monday 27th January, Oliver complained of chest pain and dizziness, it settled down shortly after and he went to lay down, he then had 1 focal seizure (it only affected one part of his brain), I got him and his siblings (Hunter 9 & Alexis 4) ready to head to the hospital and on our way there, he had another focal seizure.

Sadly, not only is his brain and his seizures an issue, his heart is an issue to.

A couple of months ago, Oliver complained of chest pain and heart beating fast and hurting his chest and throat, I got him into the Emergency Department and his heart rate on arrival was 245bpm and he was fading fast. Nurses and drs were everywhere within seconds. With what felt like a lifetime, but in reality was only minutes, they managed to get his heart rate down to a more normal level.

On any normal day since then, his heart rate fluctuates from 50/60 BPM at resting states to 195/240 bpm during elevated periods. These tachycardia stages have no known triggers at this stage, so part of the money would be used for testing for that. He can be laying on the lounge watching tv or running around playing when his heart rate will elevate and cause chest pain, shortness of breath and fatigue and unconsciousness.

Oliver is an awesome young man, who loves minecraft, baseball and family. His wish is to “just get better, so i dont have to worry about it all anymore”.

Sadly its affecting more then just Oliver. His other 2 siblings Hunter and Alexis, have been dragged around hospitals or dropped at peoples houses or had new babysitters look after them at the drop of the hat. My husband has just taken a job in Canada to help us get some money together to get us over there ASAP, but it still could take too long for us to be able to get there before we end up not able to go.

We have been advised, to not wait too long as he could end up on a no fly list.

We shouldnt have to chose between quality and quantity of life :’(

Any help is a great help. We appreciate and love you all even if you cannot donate, please even just share it with your friends because every $ counts.