Waylon's Story

In April of 2017 Kayla and Pete DelBoverlando's 2 year old son Waylon  was diagnosed with Mucopolysaccharidosis III type A, also known as MPS III type A or Sanfilippo sundrome. Mucopolysaccharides are long chains of sugar molicules used in the building of connective tissues in the body. There is a continuous process in the body of replacing used materials and breaking them down for disposal. Children with MPS III are missing an enzyme which is essential in breaking down the used mucopolysaccharides. The incomplete broken down mucopolysaccharides remain stored in cells in the body causing progressive damage. MPS III is a terminal disease with currently no cure for it.  In the upcoming months there will be many doctors appointments along with traveling to Columbus OH for clinical trials. There is an MPS conference in Minnesota in August Kayla would like to attend as well; As a mother Kayla wants to learn all she can about the disease in order to provide the best care she can. The conference is 4 days and 3 nights. We would like to be able to raise enough money for Kayla to get a round trip ticket, hotel accommodations, and traveling expenses to Columbus. Thank you so much for your help.