Tyler and Sara (my niece) were expecting their first child on November 6, 2021. In early September, while they were out of town visiting family and friends for a baby shower, Sara fell ill and was rushed to the ER. She was diagnosed with pre-eclampsia and learned an emergency C-section was necessary. Baby Girl

Harlow Raedine was born on September 5 weighing only 3 lbs 1 oz. Little Harlow was in the NICU for a little over a month and during that time was diagnosed with a rare genetic disease called Hurler syndrome (MPS 1). It is a genetic progressive disorder (enzyme deficiency) that results in the inability to break down sugar molecules in the body affecting major body systems including skeletal, brain, and organs and result in a shortened life span. Enzyme replacement therapy (for life) and a bone marrow transplant are treatments that do not cure, but slow the progress of the disease. Harlow begins her enzyme treatments via port as they prepare for a bone marrow transplant at UCSF Children’s Hospital. Not only are the medical bills mounting but Tyler and Sara are traveling back and forth for pre-op appointments and will need to stay in San Francisco near the hospital during the bone marrow transplant and recovery period (estimated to take 5 months).

This is a devastating diagnosis, but Tyler and Sara and we have faith that God is in control. We hope to raise funds to offset their medical, travel, and living expenses during this journey. Any donations will be greatly appreciated and your prayers for this young family are also greatly appreciated!