Medical cost for tori for her rare syndrome

Hi my name is Wendy I am Tori's mum we are asking for help with medical cost as Tori's condition worsens with her rare syndrome called Proteus syndrome. We have alot of trip to brisbane hospital which is about 4 hours from where we live sometimes overnight trips sometimes week long stays. Tori is now looking at in home palliative care and is needing oxygen of a night. Tori has alot going on with lesions on her brain severe scoliosis and the overgrowth of bone around her brain that's pushing against her brain that is causing seizure activity Tori is now blind in her right eye tori and is on a grade 4 airway alert due to bony overgrowth that is 4 times the size of what it should be in her neck Tori is totally wheelchair bound. We are asking for help to get medical equipment that tori is going to need to keep her comfortable and give her the best quality of life just for the oxygen machine we are needing with all accessories we are looking at around $4,000. If you can help at all please do and help make life abit easier for tori

Thankyou so much