Our nephew was recently diagnosed with Osteogenesis Imperfecta (Type 1) which is commonly known as “brittle bone disease.”
Henrick has already suffered two leg breaks (femur and tibia) in less than 5 months, just by slipping on the floor while walking. In this case, Henrick’s life is going to be a little different than a regular kid. He won’t be able to play normal sports, ride bikes, snowboard, etc. His parents have him in swimming and plan to encourage him towards the arts and music. Chelsea plans to stay home so she can give Henrick the care and attention that he needs and they are also homeschooling the children.
Along with having brittle bones, Osteogenesis Imperfecta can also contribute to dental issues, easy bruising and 50 percent + of people with the disease will experience hearing loss as they get older.
So far they need to go to Vancouver (1-2 times) for dental work and a separate trip regarding treatment options for his OI. Now as Osteogenesis Imperfecta is not a curable disease, through their own research they were able to find a functional medicine doctor who has experience working with a child just like Henrick. His team was able to significantly lower this child's amount of broken bones from 10 broken in the 9 years before seeing them, to 1 broken in the 6 years of being treated by them. They are seeing him to work on Henrick’s overall health by way of diet changes and supplementation, which will in turn strengthen his bones naturally. Unfortunately his fees are not covered by MSP.
We are looking to raise money to help out with the medical costs. Every little bit helps and is greatly appreciated :)
Here is a link to the article in the local paper on our nephew: https://www.saobserver.net/community/support-sought-for-salmon-arm-toddler-with-broken-bone-disease/?fbclid=IwAR3J1m2GNMz-hZih1g1xs7A45tGbh7AJMPOeI3pjldwaZzlxw2WdeEQWkjI