Hiya, my name is Hayley and I'm trying to raise money for the machinery etc that I'll need to get home as a lot isn't covered by the NHS.

What happened?

I had a bad asthma attack in September. I did not think I'd end up intubated, on life support.

When I was less sedated I started having what I thought were my epileptic seizures (I have epilepsy and non epileptic seizures -, but was free for 4 years)- just got a car and license to learn to drive. Now it'll be years if ever.

This went on and I was transferred to southmead neurology. This was the biggest mistake. I had a prolonged seizure which triggered the loss of feeling in my left leg. Having intensive physio helps, but I'll need it regularly in the community if I'm to walk again.. learning to walk is no easy task!

I also have dysphagia - I can't swallow anything, so have to rely on an NG tube to give me food, water and medicine. It's what is keeping me alive.

My whole life has turned upside down. I've been diagnosed with a neurological disorder called FND. This stops sending messages from the brain to the necessary part of the body in order for it to work..mine isn't sending those messages.

The worst thing, FND can happen to any part of the body at any time. This disease can be managed to a degree, but never cured.

I have been told my house is no longer suitable for me to live in as the wheelchair won't fit through the doors, it's I safe and it be stuck in 1 room all day everyday..I'll have to use the commode and have bed baths daily, with the help of carers. This is not who I am at all.

I'm a free spirit, loving the countryside, walking the dogs, being independent.

I know there are people so much worse off than I am, but if you could help give just a small amount or share this, I'd really appreciate it.

We don't know what equipment we'll fully need but we know 1 suction machine costs £1800 cheapest. And the needed extras are £50+. Without suction I can aspirate and end up extremely poorly, probably ITU again.

I don't know if I'll ever walk again or eat a meal and have a drink. The thought is soul destroying.

Moving house is going to be added stress which makes my seizures worse and I have no signal apart from Benji. So I could have so many more falls and injuries. It doesn't seem I can be left alone.

The new house will be a challenge for us, hopefully a blessing though. But with me not working and not having and support money, we're relying solely on Tom's wages to keep the house going...which isn't a lot.

Any money given that is not needed will go to a charity helping those with FND and help raise awareness and knowledge.

Thanks in advance,

Hayley Coombs