Stephanie Spirit Support Fund

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My beautiful, big-hearted 46-year-old cousin Stephanie Tiedeman-Bates -- a married mother of three and special education program aide in Concord, NH, was recently diagnosed with Amyotrophic Lateral Sclerosis (ALS) a.k.a. Lou Gehrig’s Disease. 

ALS is devastating. It slowly and steadily destroys the neurons that control the body’s voluntary muscles.  ALS brings weakness, then paralysis, then death.  It is terminal and currently there is no cure. 

Stephanie has been given a very frightening 3-5 years to live.  Over that time, Stephanie’s strength will deteriorate; she will lose mobility of her arms and legs, the ability to swallow and speak, and finally, the ability to breath.  She has already lost partial use of her right arm and is beginning to feel tingling in her left arm and her right leg – a sign that damage to these neurons has already begun. 

As her ALS progresses, Stephanie will need a cane, then a walker, then a wheelchair.  She’ll need to alter her home for accessibility, require equipment for eating and physical therapy, ventilators for breathing, and home health aides to assist her in all daily tasks.  All of that costs much more than a special-education aide can afford.   

This is where you come in.  Please help support Stephanie in her fight against time. Our GoFundMe goal is to help defray the cost of Stephanie’s medical and life care expenses and give her a little peace of mind while she battles this monster of a disease.

Stephanie is facing ALS with courage, grace and humor.  The love and kindness for which she has always been known endures.  Her warmth and optimism is extraordinary and she is an inspirational light in the face of this devastating diagnosis.  Thank you for supporting Stephanie, for becoming a critical part of her story, and for giving her the chance she deserves to continue to live with some measure of comfort and dignity.  Each and every contribution – no matter the size – gets us closer to our goal for Stephanie.  So please give whatever you can, and share Stephanie’s story with everyone you know.  Thank you for your kindness, caring and support!
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    Organizer and beneficiary

    Sarah Lalone
    Organizer
    Scituate, MA
    Stephanie Tiedeman-Bates
    Beneficiary

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