Maya's Medication: To Give Her More Time

This is a NEW Go-Fund-Me Page.

I would like to start off by thanking everyone who donated to Maya's previous Go-Fund-Me page.

 

Hi Everyone,

As most of you know, on 12-04-20 Kim & Shawn's daughter Maya, was diagnosed with an inoperable brain tumor (DIPG). DIPG is a rare, fast-growing tumor that forms in cells called glial cells in a part of the brain stem called the pons. DIPGs tend to spread to nearby tissue and other parts of the brain stem, are hard to treat, and have a poor prognosis (outcome). Maya was given a prognosis of 8-11 months.

From her date of prognosis, Kim & Shawn have not stopped fighting for their Sweet Little Maya.

On 01-02-21, Maya did an 8 week cycle of radiation at Brigham & Women's Hospital in Boston. While waiting the necessary weeks to see the results of the treatment, they were able to get her in a trial drug study in New York.

On 02-27-21, she started the "ONC201" trial drug in New York but in the middle of July Maya was taken off of the trial when she lost the ability to walk and talk. At this point the doctors decided that she should start a 2nd round of radiation. This time Maya completed a 6 week cycle again at Brigham's in Boston. After this last round of radiation and due to the aggressiveness of the tumor, Kim and Shawn were only left with one option - to put Maya on a daily medication routine. The doctors wanted Maya to take 2 different cancer treating medications to try and slow the tumor down. The doctors submitted both medications to the insurance company. The first drug (Everolimus) was approved and the other was denied. The drug that was denied is called KISQALI. The reason for their denial..... because it's a breast cancer drug. Yup! That's what I said! Ridiculous, Right?! The doctors appealed the decision with the insurance company twice, even getting letters from head of oncology at Dana Farber stating that this breast cancer drug has been used to treat pediatric cancers and still they were denied coverage of the drug! I love Kim and Shawn very much and I love Maya more than anything and I'm not going to let an insurance company decide her fate.

This medication will not save Maya's life, but what it will do is try to slow the tumor down.  This will help give Kim, Shawn & Abby more time with Maya. The monthly out-of-pocket cost for KISQALI is $5,660.75. Kim and Shawn are exhausting all of their resources to try and come up with the monthly payment for this medication. I want to help alleviate their financial burden so all they have to focus on is spending their precious time making memories with Maya. Please help me do this by donating what you can to Maya's monthly medication bill.

Giving A LITTLE is Giving A LOT!

Thank You to Everyone in advance!