Matt's Battle with Cystic Fibrosis
Donation protected
As many of you may know my fiancé, Matthew Marra has Cystic Fibrosis and has been battling this incurable disease his whole life. Matt is currently 33 with an outgoing, energetic personality, and has always been the center of attention. Instead of people crowding around him to laugh at his jokes, people are now drawn to his nasal cannula that is hooked to his oxygen machine which is strapped to his back whenever we leave the house. Matt is still his determined, energetic self, making jokes about anything and everything he can. Matt wouldn’t be himself without at least one joke a day about his failing lungs.
While I have not known Matt his entire life, the past 2 years that he has been in my life have been the best ones yet. Matt has bent over backwards our entire relationship to make sure I am always as happy as can be, and now it is my time to fight for him. Matt has Cystic Fibrosis (CF) which is “a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure.”
Within the past 2 years Matt’s health has taken a turn for the worse. For someone who once only went into the hospital once every couple of years, to now going in every couple of months’ life is changing quickly. The average life expectancy for someone with CF is 38 years, this number has doubled in the last couple of years but there is still no cure. With Matt’s lungs functioning at a third of what a normal person’s lung function at, it is time to ask for the community’s help.
The only way to keep Matt alive and breathing is a double lung transplant. Without this Matt only has about 3 years left with us here. The average out of pocket cost to the individuals and their families is $50,000, after insurance has taken care of whatever they can. We are asking our friends and families to help and support us in any way possible. With your donation you are not only giving Matt a fighting chance but you are also giving me the greatest gift I could ever ask for, having my fiancé around for as long as I possibly can.
17-22 people die every day while waiting on an organ transplant. If Matt does not make it to his new set of lungs all of the proceeds will go to the expenses for his funeral, and if there is any left over the remaining proceeds will go to the Cystic Fibrosis Foundation.
I want to thank you from the bottom of my heart for supporting me and this wonderful man’s fight against CF.
While I have not known Matt his entire life, the past 2 years that he has been in my life have been the best ones yet. Matt has bent over backwards our entire relationship to make sure I am always as happy as can be, and now it is my time to fight for him. Matt has Cystic Fibrosis (CF) which is “a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure.”
Within the past 2 years Matt’s health has taken a turn for the worse. For someone who once only went into the hospital once every couple of years, to now going in every couple of months’ life is changing quickly. The average life expectancy for someone with CF is 38 years, this number has doubled in the last couple of years but there is still no cure. With Matt’s lungs functioning at a third of what a normal person’s lung function at, it is time to ask for the community’s help.
The only way to keep Matt alive and breathing is a double lung transplant. Without this Matt only has about 3 years left with us here. The average out of pocket cost to the individuals and their families is $50,000, after insurance has taken care of whatever they can. We are asking our friends and families to help and support us in any way possible. With your donation you are not only giving Matt a fighting chance but you are also giving me the greatest gift I could ever ask for, having my fiancé around for as long as I possibly can.
17-22 people die every day while waiting on an organ transplant. If Matt does not make it to his new set of lungs all of the proceeds will go to the expenses for his funeral, and if there is any left over the remaining proceeds will go to the Cystic Fibrosis Foundation.
I want to thank you from the bottom of my heart for supporting me and this wonderful man’s fight against CF.
Organizer
Alicia Christine
Organizer
Orlando, FL