Matthews condition is called Infantile Neuroaxonal Dystrophy which is a terminal condition as it slowly makes the body weaker and daily functions become so regressed it cannot sustain life. The prognosis is between 5 -10 years old and unfortunately there is no way of knowing how quick the disease will progress. It is extremely rare as there are only around 100 cases worldwide. Matthew has a full time peg feeding tube, he also has an artificial airway to help keep his airway open as it is now partially collapsed. He also has a ventilator at night time as well as oxygen during the day. Much adaptation is needed to the family home in order to make Matthew's quality of life more comfortable and less stressful for however much time is remaining to him. Most recent estimates are put at £24000 to achieve this aim. This campaign is to help with this as much as possible.