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Hiya my name is mason mullen, I was born on the 30th of April 2020 I made an early appearance I was 8 weeks early .. I had to go straight into baby unit in the vic for 8 weeks until I was big enough to get home ... I had a few complications I was on & off a cpap for 8 weeks which was hard as it was through covid so our family was split up, I got home for a little while then on the 3rd of August I got blue lighted from a specialist ambulance team to take me & my mum to the sick kids in Edinburgh which we then spent about 2 years of my life in there, I got diagnosed with hydrocephalus & lukuoedostrophy which I've had palliative end of life care with me since I was about 7 month old ... I've then had to have 45 open brain surgery's ive got 2 programmable working shunts situated in the right side of my head... I've also got an access device in the front of my head .. ive had 10 blood transfusions & the worst ever news about when my mum & dad got told I wouldn't make it until I was 5 ... I'm a big big boy with a wheelchair & I'm going to be 6 this year ... I'm smashing life my little bio xxxxx
Written by his Mummy Tracey
He is a wee Warrior.
I just wanted this wee guy to have a wee electric Wheelchair fit for a little warrior who could teach us a few lessons, defo been here before, came to see my choir last year and he was up singing and dancing. He was there and there our wee mascot warrior.
Organizer
Elizabeth Johnston Bryson
Organizer


