Mason family medical and monthly bills

Baby, Eleanor Jane Mason, was born on November 17th to Joshua and Hope Mason.

The parents did no genetic testing and the prenatal anatomy scan failed to show any signs of defects or abnormalities with Eleanor’s heart.

Upon her birth, Eleanor displayed physical characteristics consistent with Down’s Syndrome. These characteristics, coupled with a low blood oxygen level at 12-hours old led to her being admitted to Salem NICU.

At the NICU an Echocardiogram showed serious heart defects, including a complete AV Canal, a narrow Aortic Arch, and that the left side of her heart was significantly smaller than it should be. These concerns were too serious to be handled at the Salem NICU, so the family was sent to Randall Children’s Hospital.

Further testing at Randall’s determined that surgery to repair the narrow Aortic Arch was necessary. This surgery was successful, but due to swelling from surgery, they were unable to close her chest. Eleanor’s chest remained open for 5 days after surgery while doctors tried to get her swelling down and her heart working the way it needed to.

At the 5-day mark it was highly likely that given the inability for the left side of Eleanor’s heart to grow and work the way it was needing to, that a surgery would be necessary to bypass the left side of her heart entirely through a ‘Single Ventricle Surgery’.

This surgery was extremely risky, especially given the other heart defects and the Down’s Syndrome. Doctors put her chance at survival through the surgery at 75%. And if she survived The surgery it would drastically diminish her life expectancy.

Doctors gave her another 48 hours from Sunday, December 4th at 12pm to see if her heart could function properly. But if it was still unable to do so by noon on Tuesday the 6th, they would need to perform this surgery.

the funds raised will allow Josh to be off work to focus on his family and help with monthly and medical bills with Eleanor’s extended stay in the NICU/PICU