Family and Friends and anyone else that can help… I am requesting your assistance both financially and mentally. Really, I am requesting any support and assistance possible. My family and I are in a very tough spot financially right now, trying to find a way for my medical treatment and testing to find and possibly cure whatever it is that is going on with me. For those that do not know what is going on, here is the situation:
After having Jade, I had extreme fatigue every day for months to the point where I couldn’t keep my eyes open it felt like someone drugged me every day and I could never snap out it. I started having back pain and spinal pain in Feb/March, it was a burning, throbbing pain from the base of my neck all the way down to my lower back. At the end of March, I went to Big Bear and I had terrible congestion, my ears were clogged, and I got super sick with a head cold. Weeks later it seemed like I had an ear infection or lingering symptoms from the cold. I went on 3 different rounds of antibiotics/steroids. However, I did not get any better. I started to get off balance, dizzy, and episodes of blurred Vision/shaky eyes. I had episodes of vertigo/spinning along w nausea. The doctors thought I might possibly have sinusitis. They did a CT scan of my brain and it showed no blockage or anything in my sinuses. I continued to get more symptoms along with the older symptoms, such as burning/buzzing ears, hearing loss in my right ear, pressure in my head, ringing in both ears, and tingling in my right foot. I was then sent to an ENT specialist who thought possibly I have Meniere’s disease. I started to get slurred speech and episodes where I couldn’t comprehend what people were saying to me and not being able to find the right words. I was slow to think or speak. The ENT then ordered an MRI. The MRI found a few white spots on my brain, so the ENT then referred me to a neurologist who then thought I had possible blood clots in my brain. Next I had an MRA, MRV and an angiogram done of the brain. At that point they did not find blood clots. Next they did spinal tap to check for possible Lyme disease. All tests came back normal. My symptoms have continued to persist and now I have new symptoms, the right side of body is tingly, heavy, numb, and facial paralysis along with burning and tingling in the face, scalp, and itchy skin. I have nerve pains, itchy eyes, burning eyes, body rash, skin pigment changes, episodes of not being able to walk very well, legs heavy, neck spasms, tongue heavy, heart palpitations, slow heartbeat, and burning sensations all over as well as hives. The neurologist wanted to keep running nerve tests. I ended up being referred by a friend to a wellness doctor who specializes in auto immune and Lyme disease. He suspects chronic neurological Lyme disease with Lyme carditis. They are now running more blood work to try and confirm diagnosis. The treatment and visits by wellness are not covered so medical bills have already been piling up from the beginning of the year. Throughout this process Zyla had been showing strange symptoms on and off that were similar to mine. She started with feet tingly /heavy complaining of her feet being asleep, not being able to control bladder, having accidents frequently, extreme fatigue, dizzy when running and playing, ears burning, mouth burning, moments of brain fog where she doesn’t comprehend what I’m saying to her, walking strange and running weird ,tripping all the time, and frequent infections. I had full bloodwork done on her, along with Lyme disease test, yet everything came back normal. Lyme disease came back with a false positive. I had the wellness doctor (Lyme specialist) look over her test results and said this is chronic Lyme disease as well. I will be testing my other children to see if it’s at all possible that I passed this disease to them as well. I am still also looking into possible lead or mold poisoning as well. Trying to find a 100% diagnosis has been a struggle and a very emotional frustrating, and scary time for all of us. I just want my baby girl and I to get better.
Whatever you can do to help financially will be such a blessing. Please keep us all in your thoughts and prayers as well. We want to feel normal and whole again. Still consulting with our drs. in hopes of finding the best most affective treatments to fight this terrible disease. We have already paid thousands of dollars to get this far. Thank you SO much for your support!!