It's that time again where I have to do everything in my power to fight for life. Unfortunately, taking on another illness pulmonary hypertension which is basically what's expected for dialysis patients especially long term as I have been. I'm also seeing more valley fever survivors developing this condition. So it's double trouble for me. Along with my kidney failure, and leaky heart valve brings me where my current health stands. I'm no longer as strong as I was when I was first diagnosed. I'm actually not as strong as I was just in the past 2 years my health has significantly declined. Which made me on a mission to set up as much healing partnerships as I can and start doing a few fun things to live some life especially with my family who's have to endure so much in the almost 14 years fighting kidney failure and every that has come with it.
Warrior LifeStyle was helping me allow myself to keep growing and participating in my community. I wanted to sell shirts to help with the fight life. Which kept me moving which I just tried to continue to do. Otherwise my body feels like it should just be sleeping all the time now. I will be now including the merchandise to be apart of my fundraising. To help my current fight so I can still be around to see the vision I initially had for the brand to be a help to other warriors. Which I still hope to provide through my sharing and support. Like many transplant patients had to do when they run out of options with their own clinics as I’m still on hold status with my heart pressures being high. So now I need start looking for a transplant center who can handle my complicated case and unfortunately may require me to go to another state if that’s where this leads me. My condition can’t get better unless I’m able to give my other organs relief which are all working overtime including the osteoporosis from long term dialysis. Which much of my pain comes from.
I was hoping when I seen my pulmonary specialist a few weeks ago they would have good news especially since I've been able to get off of oxygen support. Unfortunately they didn't see much improvements in the pressures and was able to special order a higher dosage which we can only hope works along with diet and physical therapy. However my mobility issues continue to struggle especially after coding last summer and the more recent episode that put me in the I.C.U. It's obvious how fragile my health is now. So I know I can't just wait and have to start making moves. This fight now is for survival because I know how hard my family works to keep me alive. Especially my husband, Daniel who left his state job to be my main care giver. This allowed us to start home hemodialysis which is more consistent and gentle on my heart and body. I creatively tried to hustle to keep what he have going and now I know we have to take on more. It's literally a miracle we still maintained our house but it was not without struggle and reaching out for help.
Proceeds will help travel cost associated with looking for new transplant center along with reserve funds for the transplant as we would still have to come out of pocket for a certain percentage. Also, funds will also be used in my natural homeopathic healing as I prepare myself and alleviate the issues with my heart and bones.
As I've prayed, stayed still for days contemplating my next move and know that this is what I need to do for my survival. Thank you to all who has carried us through this over decade fight. I'm just thankful I've been able to connect and still be somewhat of service when I can.
Much love always,
Store: www.WarriorLifeStyle.tictail.com and just let me know what you like by message.
All proceeds will help my, "Maribel's fight for life"