Update From Mandy!!!!!

Hey everyone! I just wanted to post here and update y’all! If you have been following along you know I had a couple good days of almost normal vision last week but woke up Thursday with all my original symptoms and it was a total let down for us all! My sweet little family has had very few highs in comparison to the lows over the last few weeks. However during the highs and lows a lot has been put into perspective for us, we have questioned this path and where it will lead us and what it means, I have valued the time I have with my family and the people I love more then ever before and I have some how managed to fall even deeper in love with my fiancé Scott Harris. So not all bad things

After Thursdays setback we began trying anything and everything while we waited for the hospital records to be released to my doctors, we did the ophthalmologist, optometrist, chiropractic, infusions, psychiatric nurse practitioner, etc I’m back on the medication prescribed for the original diagnosis and having to take it every 4 to 6 hours and it makes me feel like poop…. But we aren’t sure what/if anything is helping, but I am feeling better and my vision is much much better, still very dizzy it takes me a min to focus on things, and my depth perception is off 90%of the time, it has been 3 days of consistent or slightly better symptoms and it’s giving me hope that I’m moving in the right direction! IF (big IF) my progress continues then I am going to try to return to work later this week or next on a very limited schedule, we are running out of time and money with only one income, so anything I can do will be beneficial to our household!! I still can’t drive the motion of the car is almost unbearable as a passenger I’m not sure how it would be as the driver…

We were really hoping we would have answers by now but we do not! Every doctor wants to prove the original preliminary diagnosis… even though everything keeps coming back negative to support it! It’s very frustrating! 10 days ago my doctor requested my hospital records so he could send them to the neurologist and ENT and have them reviewed prior to seeing me, but today I was informed that the hospital has NO record of me being there…they have NOTHING! This is scary and would be a huge disappointment as I would likely need to redo all my testing from blood work to MRI and that is just not something our family is up for! I will talk to the doctors again tomorrow to see what the next step is now..

thank you all again for the continued support love and prayers! We appreciate it so so much!

Mandy Capanear, so many of us know her and soooo many of us love her. A few of us get to call her our best friend. She has the ability to make you feel like the only one.

Things are not going well.

As you will read below, Mandy is facing a medical mystery that is life altering and preventing her from completing everyday tasks. She cannot work, drive, or walk unassisted. Obviously this is an unimaginable disability to suddenly wake up to and has taken so much away from Mandy, her family and their income.

WHERE THE MYSTERY BEGAN:

Monday morning Mandy woke up and she said her eyes felt dizzy. She tried to go about her day, but the symptoms got progressively worse. When she began seeing double vision continuously she had her fiancé Scott take her to the ER. She was immediately brought in on a stroke protocol. They did rule out stroke, MS and all other obvious conditions that could cause her symptoms. She spent Monday, Tuesday and Wednesday in the hospital with no change to here eyesight and only a preliminary diagnosis of Myasthenia Gravis, which is not good news, but the medication for MG is not working yet, so we are doubtful that is the case. Mandy was released from the hospital Wednesday afternoon and told to “contact a neurologist”…and they suggested Lonestar Circle of Care, so immediately after leaving the hospital we all headed to LSCOC only to be told she was out of luck and they don’t have a neurologist, the neurologist they refer to doesn’t have an appointment for a month and honestly that just won’t work...I personally added her to my account at Ochna health and was able to get her seen by my primary doctor. He suggested an an Ophthalmologist, so we had another appointment with the Ophthalmologist the same day. He could not find anything physically wrong with her eyes and and agreed it could be MG. We are now waiting for blood work to come in to confirm diagnosis. And she is getting a referral to a neurologist and rheumatologist, however both those specialists are booked out over a month. So she waits!

Mandy does not have health insurance, does not qualify for medical assistance as of yet, and as of Monday morning she has zero income. I am asking friends, family and those who care to make a financial donation, in hopes of making Mandy’s life a little less stressful.

Mandy, is a remarkable human, who will literally kick a door down to help others. It is time we kick hers down and show her how loved and supported she is.

All donations go directly into Mandy account.

The only other thing Mandy asks is that when she regains her sight that all of her amazing clients come back to her.