Hello my name is Shena Love, this go fund me has been created to meet the growing needs of Malachi McGowan. He needs a P-Pod Chair and insurance doesn’t cover the expense.

 

Malachi is very ill and was recently released from the hospital with a Bi-Pap machine and hospice. He has NBIA-Neurodegeneration with brain iron accumulation, it is a rare, inherited, neurological movement disorder characterized by an abnormal accumulation of iron in the brain and progressive degeneration of the nervous system." For the past few weeks he has had some significant declines in his oxygen saturation.

 

This chair will really help him; his care givers want to make him comfortable & give him the best care in his home! Please consider donating towards this purchase any amount big or small helps! Thank You!

 

From His Mother(Chequita)

"My son Malachi was born April 28 2016 he was a happy baby boy. He was cruising around couches, sitting up by himself , playing and talking. At 14 months Malachi was not able to do those things anymore. I was told “he will be fine” at 18 months I asked physician to send me somewhere else and they did. We started going to Vanderbilt to see specialists for genetics and began genetic testing. May 13 2018 was diagnosed with INAD. He can say a few words and now is fed by gtube. He has had his tonsils and adenoids removed. He has a in home nurse three days a week he needs to be rotated every hour to prevent the break down of his skin I am Malachi’s care giver at home. Malachi is still a cheerful happy boy who is loved by everyone. My pray is that God will find a cure for not just Malachi but for all who has been diagnosed with this disease."