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Make Seth Dryer's Home Accessible - AFM Battle

$21,428 of $100,000 goal

Raised by 187 people in 6 months
Created February 11, 2019
Team Seth
on behalf of Joni Dryer
Update 8/10/19

As you may have heard, Seth was not able to come home on August 5th. Unfortunately, the full-time nurse assigned to his care backed out and left the nursing company.  This left them without a nurse needed for discharge. Even with this set-back, it is the hope to bring him home the week of August 19th. There have been several issues they have been dealing with like having to incur the cost of an appropriate hospital bed and mattress due to the fact insurance would only provide the most generic bed and mattress; and also the cost of installing a ceiling lift to transfer him to his wheelchair due to the fact that a bedside hoyer lift was inadequate, for a total of $22,000.00.  Please keep Seth and the family in your prayers. The whole situation is very complicated.

Much of the immediate needs for preparing the Dryer home are complete, but there are still several small projects to complete. If you can help out in the next week, complete this form to let us know your availability and skills. https://forms.gle/BiuR3Vx91hCJubSt9

As mentioned in an earlier post, the recent renovations are a stepping stone to get Seth home. A professional evaluation of the Dryer home has determined that it cannot be renovated to meet Seth’s complete accessibility needs and the needs of the family. The footprint of the Dryer home does not allow for an accessible bathroom or shower. Seth’s current bedroom will only accommodate a hospital bed and machines. Because of this, they knocked out the wall adjoining the living room and his small bedroom and placed a set of french doors making it possible to roll his hospital bed out into the living room where they have installed a ceiling lift to transfer him from bed to wheelchair. 

Imagine that the Dryer home was a place where the children were growing out of and now, John and Joni are adjusting their vision to it being a place where their family can come and be together with Seth and encourage him through his healing process and accommodate a full-time nurse, as well as therapists.  While the best case scenario would probably be a new house, John and Joni have put a lot of thought into making the best of their current home.

Are you wondering how you can help? A donation to the GoFundMe account or directly to the Dryer family is needed and appreciated. We are also starting an “Adopt a Project” list of other ways you can help. Items on this list can be adopted by individuals, organizations, businesses, or groups of friends/families. 


“Adopt a Project” 

Sign up here to help - https://forms.gle/D6PeAPAg9WfAkhQA7 


Current Home Projects:

Generator
5 New Basement Windows
New Basement Door and Frame (to the outside)
Foundation Repair (waterproofing)
Basement ceilings are low so the space isn’t very usable. Would like solution.
New Furnace (original to house - missing humidifier, requiring a hose from furnace to drain when using a/c)
Dehumidifier for basement 
Deep freezer (chest style)
Air duct cleaning

Home addition:

Having a second bathroom in the house or renovating the current one (not enough square footage to accommodate Seth’s needs)
A larger bedroom for Seth with access to a sink
A larger master bedroom
Laundry moved to first floor
Outdoor space (like screened in porch) so Seth can go outside without being center of attention

Outside Projects:

New driveway poured
Demolish current garage
Build a new garage (if possible, that is attached or has sheltered ramp to house to protect Seth from bad weather)

Misc Carpentry Projects:

Finish walls in upstairs closet.  (Many angles - no drywall)
Redesign of bathroom cupboard and addition of door(s)

Other Major Needs:

Handicap van so they can take him places other than doctor appts.  Approx. $35-40K new
Support team member to help when misc needs come up
Desk work - Help finding organizations & free help that could ease our new lifestyle.
Finding Seth resources to motivate, encourage, and inspire him to work harder and smarter towards making a full recovery.
In an effort to raise $ for current and future financial struggles, help in making the public aware of AFM.  (example: TV, radio, etc.)
Someone to plan a fundraiser event
Some to work interface with businesses who may donate needed services or supplies (for example, the screen in Seth’s room needs to be repaired. The local screen company would probably fix it for free, but the family and volunteers have been so busy with other responsibilities that it hasn’t been fixed yet)

Criteria for a new home:

A neighborhood with sidewalks
A community where Seth can have a little freedom, leave home in wheelchair and interact with neighbors, go to store, maybe to school.
A school district that has quality disability services
Preferably a home in Deer Park/Dillonvale

Update 7/15/19
Discharge Date Set!!!  And Volunteers are Needed for Painting, Handyman Skills, Yard Work and Donating Materials at Dryer House ASAP


Seth has a discharge date from Children’s Hospital of August 5th. He is still recovering and will be receiving therapy at home.  He will be coming home with the trach in and on a ventilator. He has worked up to breathing 45 minutes, twice a day on his own, but his diaphragm is very weak still. Seth and his family are so excited about coming home. Seth’s family is a little nervous as he needs 24 hour care. Joni and Jacob are being trained as his primary caregivers, but the need for nurses with trach and vent training is still necessary. Efforts are underway to find nurses who can cover shifts.

With the help and donations of so many, renovations to the Dryer’s home are underway. The renovations are a stepping stone to get Seth home. A professional evaluation of the Dryer home has determined that it cannot be renovated to meet Seth’s complete accessibility needs and the needs of the family. The footprint of the Dryer home does not allow for an accessible bathroom or shower. Seth’s current bedroom will accommodate a hospital bed. The size of his room won’t allow for transfer from his bed to his wheelchair using the needed lift, so part of the wall adjoining the family room has been removed and a French door added. His bed can be rolled into the family room, where the lift will be installed.


Please sign up to help to help us be ready for Seth on August 5th:

There is still a lot to be done before Seth comes home so we are having a few work group work sessions to do outside clean up and gardening and inside finishing work at the Dryer home. Please see this web page  that Joni has set up detailing some of the projects that need to be completed in the house. Here is a link to sign up  of the house.   Here is a link to sign up to donate needed supplies  to complete the renovation. 

Monetary donations are also needed as the renovations so far have been very expensive.  A special thank you to all the friends who have spent countless hours volunteering already. 

Thank you for your continued support and prayers. Please pray that the insurance will provide the appropriate equipment that Seth needs at home.

In case you missed it, the Dryers were recently featured on Fox News https://www.fox19.com/2019/06/25/its-been-very-remarkable-local-family-hopes-raise-awareness-polio-like-illness/

Original GoFundMe explaining Seth's battle with AFM begins here:

At the worst point, the only part of Seth’s body that wasn’t paralyzed were his eyebrows. He battled for his life in the ICU for four weeks.

Seth was a typical 15 year old. He spent his free time hanging out with friends, playing baritone in the Deer Park High School marching band, and playing video games. What isn’t typical about Seth is that he is a great listener and always showed extra concern for his peers.  At his high school, he volunteered in a program where troubled students came for support.  He was even recognized as a special contributor to this program.

37012942_1550749743665101_r.jpeg
Everything changed for Seth in September of 2018. After several trips to the doctor and local hospital battling vomiting, weakness, neck pain and the inability to swallow, Seth was admitted to Cincinnati Children’s Hospital on September 20th. By the next morning he was taken to ICU where he battled for his life for the next four weeks.

Since that time Seth has been diagnosed with a rare and devastating Polio-like disease called Accute Flaccid Myelitis (AFM) and has been fighting every minute to recover. Each day brings tiny steps toward recovery, but he is still almost completely paralyzed. The doctors warn that the road will be long and difficult and will involve many surgeries and therapy, if full rehabilitation comes at all.

Currently Seth can only move his legs and feet, his left wrist and fingers (yet still weak) and his face.  He is unable to swallow (eat or drink) and has a G-tube in his belly for nutrition. He cannot move or turn his head, move his shoulders or arms or his right hand (he is right-handed).  He has had a tracheostomy and needs the help of a ventilator. He requires to be suctioned by mouth and by trach.

Imagine what it would be like to not be able to turn your head even an inch either way.  Or to have an itch that you cannot scratch. To not be able to talk for months at a time or taste food.  Can you imagine how stiff and sore your muscles would get from not moving? Even though Seth is paralyzed, that doesn’t mean he can’t feel. He can feel pain, he can feel discomfort.  

Since September 20, Seth’s family has been at his bedside 24 hours a day. The stress and financial burden on the family, including loss of income and travel expense from having at least on family member with Seth at all times has been immense. As they think of the next steps in Seth’s recovery - bringing him home - they are overwhelmed. Their family home of 28 years in Deer Park, Ohio is 1200 square feet, with two small bedrooms, one small bathroom, and family room and kitchen on the first floor and one bedroom on the second floor. In its current state, the house cannot accommodate any of the accessibility equipment Seth requires including a wheelchair, hospital bed, lift, a shower chair, ventilator, feeding machine, monthly shipments of supplies, and the technology that will help monitor Seth’s health.

Seth’s family is in desperate need of financial help to either renovate their current home or purchase a different home so they can provide for Seth’s immediate and long term needs as they go together through the coming years of rehabilitation and recovery. They need a safe place for Seth that can accomodate the equipment that will be needed for his care and rehabilitation as well as an environment that will be conducive to the needed team of support that it will take to care for Seth. As a long-time friend of the Dryer family, I am asking for any help that you can offer to make the road ahead a little easier for Seth and his family.

John and Joni Dryer and their nine children have had more than their fair share of tragedy in their lifetime, including a house fire and losing their third daughter/sister at the age of 19 to cancer. Will you please join me in showing the Dryer family that they are not alone by helping to prepare a handicapped accessible home for Seth?
+ Read More
As you may have heard, Seth was not able to come home on August 5th. Unfortunately, the full-time nurse assigned to his care backed out and left the nursing company.  This left them without a nurse needed for discharge. Even with this set-back, it is the hope to bring him home the week of August 19th. There have been several issues they have been dealing with like having to incur the cost of an appropriate hospital bed and mattress due to the fact insurance would only provide the most generic bed and mattress; and also the cost of installing a ceiling lift to transfer him to his wheelchair due to the fact that a bedside hoyer lift was inadequate, for a total of $22,000.00.  Please keep Seth and the family in your prayers. The whole situation is very complicated.

Much of the immediate needs for preparing the Dryer home are complete, but there are still several small projects to complete. If you can help out in the next week, complete this form to let us know your availability and skills. https://forms.gle/BiuR3Vx91hCJubSt9

As mentioned in an earlier post, the recent renovations are a stepping stone to get Seth home. A professional evaluation of the Dryer home has determined that it cannot be renovated to meet Seth’s complete accessibility needs and the needs of the family. The footprint of the Dryer home does not allow for an accessible bathroom or shower. Seth’s current bedroom will only accommodate a hospital bed and machines. Because of this, they knocked out the wall adjoining the living room and his small bedroom and placed a set of french doors making it possible to roll his hospital bed out into the living room where they have installed a ceiling lift to transfer him from bed to wheelchair. 

Imagine that the Dryer home was a place where the children were growing out of and now, John and Joni are adjusting their vision to it being a place where their family can come and be together with Seth and encourage him through his healing process and accommodate a full-time nurse, as well as therapists.  While the best case scenario would probably be a new house, John and Joni have put a lot of thought into making the best of their current home.

Are you wondering how you can help? A donation to the GoFundMe account or directly to the Dryer family is needed and appreciated. We are also starting an “Adopt a Project” list of other ways you can help. Items on this list can be adopted by individuals, organizations, businesses, or groups of friends/families. 


“Adopt a Project” 

Sign up here to help - https://forms.gle/D6PeAPAg9WfAkhQA7 


Current Home Projects:

Generator
5 New Basement Windows
New Basement Door and Frame (to the outside)
Foundation Repair (waterproofing)
Basement ceilings are low so the space isn’t very usable. Would like solution.
New Furnace (original to house - missing humidifier, requiring a hose from furnace to drain when using a/c)
Dehumidifier for basement 
Deep freezer (chest style)
Air duct cleaning

Home addition:

Having a second bathroom in the house or renovating the current one (not enough square footage to accommodate Seth’s needs)
A larger bedroom for Seth with access to a sink
A larger master bedroom
Laundry moved to first floor
Outdoor space (like screened in porch) so Seth can go outside without being center of attention

Outside Projects:

New driveway poured
Demolish current garage
Build a new garage (if possible, that is attached or has sheltered ramp to house to protect Seth from bad weather)

Misc Carpentry Projects:

Finish walls in upstairs closet.  (Many angles - no drywall)
Redesign of bathroom cupboard and addition of door(s)

Other Major Needs:

Handicap van so they can take him places other than doctor appts.  Approx. $35-40K new
Support team member to help when misc needs come up
Desk work - Help finding organizations & free help that could ease our new lifestyle.
Finding Seth resources to motivate, encourage, and inspire him to work harder and smarter towards making a full recovery.
In an effort to raise $ for current and future financial struggles, help in making the public aware of AFM.  (example: TV, radio, etc.)
Someone to plan a fundraiser event
Some to work interface with businesses who may donate needed services or supplies (for example, the screen in Seth’s room needs to be repaired. The local screen company would probably fix it for free, but the family and volunteers have been so busy with other responsibilities that it hasn’t been fixed yet)

Criteria for a new home:

A neighborhood with sidewalks
A community where Seth can have a little freedom, leave home in wheelchair and interact with neighbors, go to store, maybe to school.
A school district that has quality disability services
Preferably a home in Deer Park/Dillonvale
+ Read More
Seth is Coming Home on August 5th. See this Sign Up Genius to see how you can help: https://www.signupgenius.com/go/70A0944A8A72FAB9-dryer
+ Read More
John and Joni are in the process of preparing their current home for Seth’s homecoming in July of 2019. With the help of friends, they are re-configuring the layout of the first floor of their home. The renovation is not ideal, but it will be good enough to get Seth home. We will continue to raise funds for uncovered expenses of caring for Seth and possibly expanding their current home or finding another house that would accommodate Seth’s needs and the entire family.

The Dryers were recently featured on Fox News

https://www.fox19.com/2019/06/25/its-been-very-remarkable-local-family-hopes-raise-awareness-polio-like-illness/

Thank you for your continued financial support and prayers for Seth’s healing.
+ Read More
The latest news on Seth's recovery. A couple weeks ago he had three procedures done to prepare him for life outside the hospital. All seemed like it had gone well until the wave of immense pain started shortly after. It was and continues to be struggle to keep him comfortable. Those who follow my mom (Joni) on Facebook may have seen that he had a CT scan late Friday. It turns out a complication was discovered and an infection has started to develop. I wish that I could share something more positive at this time, but it has been a tough few weeks.

Thank you to everyone who has shared, contributed funds, and continues to pray for Seth and the family. All the love and support from those who have been following his journey is heartwarming.
+ Read More
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$21,428 of $100,000 goal

Raised by 187 people in 6 months
Created February 11, 2019
Team Seth
on behalf of Joni Dryer
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