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Hi I'm Nadine and I'm 32 years old and have multiple complex health conditions including complete intestinal failure, Adrenal Insufficiency, Ehlers-danlos syndrome and Inflammatory bowel disease just to name a few but I'm not going to let that stop me.
I've already had some ups and downs over the years. I was diagnosed asthmatic at 18months old so I was in and out of hospital mainly in my teen years but that was just the start of it.
At 13 after bleeding for 3months and not knowing that was where it was coming from I was diagnosed with Inflammatory bowel disease. I was so ill that they tried everything from different medication including steroids and immune suppressants to resting the bowel but nothing worked except the steroid, my family told I wasn't going to survive the night but I did and kept fighting but at 14 years old there was nothing else to try and I had my first ileostomy bag and it saved my life. At my smallest leaving the hospital I was just over 2 and ½ stone but quickly put on a lot of weight with the steroids.
Unfortunately because I was so unwell my adrenal glands stopped working and I was diagnosed with Adrenal Insufficiency a life-threatening condition at 15 years old after I collapsed unconscious on my bedroom floor. My dog at the time Buster, a staffie, wouldn't leave me protected me and every time I collapsed after that normally in the night he would bark to wake everyone up to help me. He saved my life so many times and we didn't even know it. Now I have a fully qualified Medical Detection Dog Molly and I can't imagine life without her (I am not asking for money at all for her we fund raise for the charity but that is totally separate this is for me and my husband to have a safe, practical home).
I'm fundraising to try and finish the adaptations we need to our bungalow so we can move in and be a family again.
Please help me get the disabled electric bed I need it's £3500 and we have now had our boiler go as well
In 2024 from osteoporosis, I broke half my back, neck, sternum and pelvis. The doctors told my family I was on an enforced DNR (Do Not RESUSCITATE) because I wouldn't have survived resuscitation but I defied the odds kept fighting and here I am.
Things aren't "normal" I'm hoisted and can't stand which is how I broke my back in the beginning but I am living life again and can go out in my wheelchair with my family, dog and nurses. I have lost a lot of my independence and confidence but I'm very grateful to still be alive and have the love and support of the people around me so I can spend time with my husband and family again.
We had to move into a bungalow as our old house wasn't suitable or safe as I was on a hospital bed in our livingroom so that was my bedroom, bathroom, livingroom everything and I haven't been able to stay in the same room as my husband for nearly 2 years at home.
Unfortunately, because my husband works full time the council grant doesn't cover the cost of all the adaptations we need for us to finish the work and be able to live safely again.
I feel so guilty asking for help but I wouldn't if we could do it on our own.
All my life my family have helped us financially but have struggled along the way. They want to keep me safe but we are really struggling now and they can't afford it either. My mum helps care for me and my dad works full time just to help me as much as they can. Previously when we lost a family member my dad used his money to buy a car that would be suitable for me but it being old it's not going to last much longer and we don't have the money to replace it now to something more safe and suitable for me so any money would really help towards a new car too so I can keep going out and enjoying life.
While the adaptations are being done we are living with my parents too so their dining room is my bedroom for now and they are always putting me first and giving up things they need to support me I don't know what I'd do without them they really are amazing and I get a lot of my strength and fight from them.
Because we couldn't afford a bungalow suitable for my needs the others were too small to get my wheelchair through as we only knew when looking that most of them aren't built for wheelchairs the hallways are too narrow and the door frames too so my brother wanted to keep me safe if there was a fire etc. I wouldn't have been able to get out so he gifted us money so we could buy somewhere where I would be safe from his own critical illness pay-out which needs to last him the rest of his and his families life too.
But on top of that I need to have an electric bed as I have to have my back and neck supported at all times and I can't sit up without it but it's not funded for me and my husband as they have said a single bed is fine for me but me and my husband don't want to continue living in different rooms why should we have to we are no different than any other married couple but because I am disabled we are treated differently how is that fare!?
As well the grant doesn't cover flooring at all so with the doors being widened and also having to use my wheelchair indoors we can't keep the carpets they aren't suitable we need solid flooring so I don't damage it or my wheelchair driving in and out l everyday.
We can't easily get the car on the drive to get me out sometimes takes multiple attempts and with the car where we need it we can only fit one car on there so my nurses will have to park on the road and I don't want to upset my new neighbours by blocking the road all the time. The garden isn't flat for me to use at all which I'd really glike to do and try and have a little raised vegetable patch for me to grow things and enjoy the outside with my dog, family and friends.
We also want to start a family but we can't do it naturally and we can't afford to do it now either so every penny will help if you can.
If I wasn't desperate to take the strain off my family I wouldn't ask but if you can help I would really appreciate it.
Thank you so much to everyone that has donated so far we really appreciate the love and support. We are so overwhelmed by your generosity and kindness it really is helping take a lot of stress off our shoulders especially mine. So far the money you have donated has helped pay towards our chimney being removed and our roof being fixed that was leaking. We have also found a leak under the 1 carpet we were going to keep but now we can't with the damage and mould it needs replacing as well. The adapted electric bed I need we are looking into now as I have to sit fully assisted otherwise if I didn't then I could break more bones in my back or neck and I have been told if I do then I probably won't survive (but then they said that last time and I'm still here fighting) and that's not a risk I really want to take this time though.
But it's not easy and I can see the financial stress is effecting my husband who works full time and just wants to be able to give me everything he can to have us back together again. He really is amazing a lot of partners especially at our age would've left a long time ago but he's always stuck by me through sickness and in health and I'll always be happy and safe in my heart because I have him.
My parents as well are doing everything they can to help us physically and financially and I'm so grateful that we have them keeping a roof over our heads while everything is being put into place so that we are in a safe home for now.
If you can please share my page with as many people as you can any amount really is helping us and I'd just like to say thank you again for helping us you'll never know how much it means to me that you are helping us get our lives back
It was actually my nurse who suggested I start this page to take the pressure off my family as she could see how much we were struggling and just want to be together again so I'd like to thank her for giving me the courage to do this and not feel so guilty for asking for help.
Love you all so much for always being on my side and supporting me in my fight to get better each and every time. Since I started fighting at 13 you've always been there for me fighting by my side keeping me going and knowing I'm not alone in this fight so thank you. Everyone says how strong I am but I'm nothing without you I couldn't do it on my own nor would I want to.
Life isn't always easy but it does bring some amazing people into your life at the hardest of times I've made the strongest relationships and I'm so grateful for that.
Love you all xxxx
Organizer
Nadine Green
Organizer

