My 3 year old daughter Maisie has Cystic Fibrosis (CF) she was diagnosed when she was five weeks old. Cystic Fibrosis is a genetic condition caused by a faulty gene. CF affects the lungs and digestive system ( pancreas, bowel and liver) . It is a very life limiting disease for which there is no cure.
Maisie is relatively well, although she has had four hospital admissions in the last year for infections. It has now been decided that Maisie will go into hospital every 12 weeks for two weeks, for intravenous antibiotics to prevent infections.
During Maisies last admission in May this year it was revealed that her lungs weren't as 'lovely' as we thought, after tests and procedures doctors had discovered that her lungs were clogged up with thick mucus.
Maisies consultant, nurse and physiotherapist put her forward to trial the Cystic Fibrosis Vest. The vest is an airway clearance system which vibrates against the chest wall, this helps to reduce and clear the thick mucus on the lungs and prevent infections.
Maisie is currently undertaking the trial but unfortunately it is to end soon. Maisie is tolerating and benefiting from the use of the vest, as Maisies mum I would love for her to continue using the vest, unfortunately due to the high cost of the vest the NHS is unable to provide this for Maisie.
I have looked into purchasing the Cystic Fibrosis Vest, and it costs £7,000. This is a large amount of money that we can not afford to pay. As the vest is, very expensive I am asking if u would consider making a donation. Any donation will be gratefully received.
The vest will be used everyday it will optimise breathing and respiratory function, reducing the risk of secondary complications such as chest infections and hopefully improve the quality of life for Maisie.
Thank you for taking the time to read our page.
xxx
Maisie is relatively well, although she has had four hospital admissions in the last year for infections. It has now been decided that Maisie will go into hospital every 12 weeks for two weeks, for intravenous antibiotics to prevent infections.
During Maisies last admission in May this year it was revealed that her lungs weren't as 'lovely' as we thought, after tests and procedures doctors had discovered that her lungs were clogged up with thick mucus.
Maisies consultant, nurse and physiotherapist put her forward to trial the Cystic Fibrosis Vest. The vest is an airway clearance system which vibrates against the chest wall, this helps to reduce and clear the thick mucus on the lungs and prevent infections.
Maisie is currently undertaking the trial but unfortunately it is to end soon. Maisie is tolerating and benefiting from the use of the vest, as Maisies mum I would love for her to continue using the vest, unfortunately due to the high cost of the vest the NHS is unable to provide this for Maisie.
I have looked into purchasing the Cystic Fibrosis Vest, and it costs £7,000. This is a large amount of money that we can not afford to pay. As the vest is, very expensive I am asking if u would consider making a donation. Any donation will be gratefully received.
The vest will be used everyday it will optimise breathing and respiratory function, reducing the risk of secondary complications such as chest infections and hopefully improve the quality of life for Maisie.
Thank you for taking the time to read our page.
xxx
Organizer
Charlotte Skinner
Organizer

