For those of you who do not know me, hi I'm Marni, I am currently studying a PhD in Art and Design, and love doing everything any 24 year old girl does. However, I have Spinal Muscular Atrophy 2, a degenerative neuromuscular condition. Having SMA means that I can not weight bare at all and I need 24hr care to help me with every aspect of life. A power chair gives me the tiniest bit of independence to be able to move around and reposition to prevent pain and pressure sores.
After having an assessment, NHS Wheelchair Services admitted that they could not provide a suitable wheelchair as they can not provide one with the necessary features that are imperative to me being able to use a chair. They also no longer provide vouchers towards private chairs, so this means I have to fully fund it myself!
My current chair is now 8 years old and is slowly breaking, the arm rests have holes in them, the buttons aren't working as well as they should, and the leg rest motor has completely stopped working. Due to the leg rest motor not working, I am unable to relieve back pain, therefore it is imperative that I get a new chair ASAP. I have trialled a few chairs but have decided on the Precision Rehab Piccolino by Paravan (orange one in the photo) as it has every feature I need, plus ones I have not had before that will make my life easier!
The features include Back Rest Recline, Tilt In Space, Riser, Automatic Leg rest Extension and Rise and Fall, plus many more.
And I will get all this for the grand price of...
My chair is going to cost more than my car!
I am applying to various charities for grants towards this, however I can not solely rely on charity grants. Therefore I am going to do various fundraisers as well. I would be very grateful if you have any ideas for fundraising, could help me fund raise, share this page or donate!
Thank you for reading my story x
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