Maelynn’s NICU Journey

We are raising funds to help with medical bills, formula and meals during this hard time.

Maelynn Elizabeth was born December 14th and everything was well. After bringing home their seemingly healthy baby, Brianna and Jonas received a call stating Maelynn’s newborn screen had come back abnormal. On December 19th Maelynn appeared very lethargic and was brought to the emergency department. By the time they had assessed her she was hypothermic, had low oxygen and was having apnea spells. Test after test everything was normal, but with her newborn screen coming back abnormal and her having apnea spells still the ED could no longer care for her and told the news that she would have to go to the NICU. After staying the night in the ED due to road conditions Maelynn was transferred to St.Marys NICU in Rochester on December 20th. Test after test again everything was normal which confirmed that her newborn was not a false positive. Maelynn was diagnosed with a rare genetic disorder called Long chain acyl CoA dehydrogenase deficiency, where the body lacks the necessary enzyme to break down long-chain fatty acids, preventing the conversion of certain fats into energy. They found that Maelynn’s body was shutting down from breast milk and formula supplementation fats. She was placed on a prescription formula made for this lifelong metabolic disorder. Though her health is improving she is still on a feeding tube and cannot be sent home until she is eating enough to be healthy so her body does not eat itself. We wish Maelynn a fast recovery.

Thank you for taking time out of your day to read their story, and considering supporting them during this challenging time. Every contribution, no matter size, brings us closer to our goal.

Please join us in supporting their journey in a time of need, anything is appreciated!!