This is a rare genetic disorder that affects children between the ages of four and ten and is terminal.
Fortunately, Evan's case was caught early and there is a glimmer of hope to possibly slow or maybe even stop this disease in its tracks, but the road will be a difficult and uncertain one. On Monday, January 25, Evan will go to the University of Minnesota to undergo three days of intense testing with the world's leading specialist for the research and treatment of ALD. If he is indeed a candidate, he will return to Minnesota a few weeks later to undergo a bone marrow transplant followed by at least a four month stay for recovery.
This is obviously a very difficult time and many people have expressed interest in helping however they can. Because there will be a lot of travel, care and medical expenses, we have set up this gofundme account as one way that you can help support Evan and his parents, Lindsey and Robert in this battle.
Donations also can be made directly to the Evan Hayman Benefit Fund at any Peoples Bank. To find a Peoples Bank near you check out this link https://www.peoplesbancorp.com/home/home . My mother, Kathy White, will be helping them manage this account while they are traveling, so checks made out to the Evan Hayman Benefit Fund can be mailed directly to her as well. If you wish to donate in this way, please let us know and we will provide the address.
There is also a bone marrow donor drive being set up and more information will be provided on that in the future.
For updates and opportunities to uplift and encourage the Hayman family, follow the facebook group Evan's Allies.
Your support and prayers for healing, strength, courage, wisdom and comfort for Evan, Lindsey, Robert and the entire family are greatly needed and appreciated.
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