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Miguel The Strong

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Hi there , my name is Miguel Hunkin. I was born on the 25th of June 2015 , I was born with a rare syndrome called "Emmanuel Syndrome" . Emanuel syndrome is a chromosomal disorder that disrupts normal development and affects many parts of the body , all cases are different, with my case my right side of my heart didn't fully form and I have complications with blood flowing to my lungs so that affect blood flowing to my body . I also have a small cerebellum, which is part of the brain at the back of the skull in vertebrates, which coordinates and regulates muscular activity. I have a lot going on right? I've had three surgeries already, two on my heart & one for a hernia I had in my groin. My parents knew of my condition when my mum was 11weeks pregnant with me , my parents were told by doctors week in & week out that I wouldn't live or would struggle really bad in life if they were to continue with the pregnancy & gave my parents the option of terminating me. Here I am 3months later, struggling a little but still fighting strong. My parents have been told when I get discharged that they'll have to buy a few things to help me out when I'm at home , a home c-pap machine "the mask that I have on" also tanks of oxygen , irrigation water bottles to fill up my c-pap . It's a lot right? So I wanted to ask if you could make a little donation to help me , help my parents out because it's already stressful having to be in hospital with a sick baby and worry about how your going to afford all this when he gets out. So please give what you can, thank you for your time and donation, Love always Miguel the strong.
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    Organizer

    Melenaite Fifita
    Organizer
    Seven Hills, NSW

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