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Hello there! My name is Zander Hobizal and my mommy and daddy are David and Shandi hobizal of St.Helens, OR and they are in need of some help! To give you a little back story:
My mommy and daddy found out they were expecting me in April 2015, and they were so excited! As my mommy struggled through her pregnancy they found out that my health wasn't going to be too great and there were lots of unanswered questions throughout mommies pregnancy. I was suppose to be a Christmas miracle but I decided I was ready a little early and arrived at 37 weeks and 6 days! I was born with Extreme Murconium Asperation that led to me having to stay 11 days in the NICU at OHSU because I couldn't breathe without extra oxygen ..... While there I was visited by many doctors and since i was released I still go back to see these special doctors. These doctors include: Cardiologists, opthemologists, ENT's, and a Genetic team. These doctors tell my mommy a lot of big words that I don't understand yet and she cries a lot but then she holds me tight and tells me that everything is going to be okay. I love my mommy, she is so strong and does everything to help me stay comfortable even when I have lots of pain that she can't always make go away. She breast feeds me and though I see her struggling to do So, I am happy she does because it helps me get stronger! She calls me her little Hulk Man. Daddy says I'm special and i love him too! He works a lot and I wish he didn't have to but I know He does it for all of us. I also have three older sister's whom love me so much and I hope I get stronger when I'm older cuz they like to wrestle a lot and have lots of energy that I'll need all the strength I can get just to stay up with them.
So far I have been diagnosed with :
1) Pulmonary Valve Stenosis- which means my heart doesn't pump the right amount of blood to my lungs so I have a hard time breathing.
I also have a Hole and a leak in my heart that my cardiologist , Dr. Garg, is watching very closely. She hoped that my heart would start healing itself but it hasnt yet so I still have to see her every 6 weeks or less until my heart gets better. Mommy said that if it doesn't start getting better or if it gets any worse that they'll have to do surgery and that scares mommy SO MUCH!
2) Extreme Near Sightedness- I can ONLY see a couple inches from my face until May when mommy says I'll get glasses and then maybe I'll be able to see better! The doctor says my eye sight is -8 and says that hopefully with glasses that'll get better! Its also said I have a sign of glaucoma, which is never seen in babies like me and I don't have a reaction I should in the back of my eye but they arent sure if that'll cause any complications or not!
3) I have a Narrow Nasal Passage on the Left side of my nose that makes it very hard to breathe if I get at all congested for any reason.
4) I have some genetic abnormalities that genetics can't yet explain. They couldn't link me to any specific known syndrome but I do have an unknown genetic marker that they've never linked to a syndrome before and they are working on figuring out why I have it and how it affects all my unique conditions seperatly and as a group.
5) I was born with a large Hematoma on my head that took a really long time to get smaller and now they are thinking my skull has grown up into that area. So I go in to see a Craniologist in April to find out when they are going to fix it. They will have to fracture my skull so it can heal properly and I'll have to stay in the hospital with my mommy for a few days when they do.
6) I have weak muscles and some developmental delays that they haven't pin pointed as one thing or another yet but I start physical therapy next week to help my body start to feel better. Hopefully I wont be in so much pain anymore!
As I'm sure you can see, I have a lot of doctors! And these doctors request a lot of tests and appointments that make mommy and I take long trips in the car that I don't really like. I have 1-3 doctors appointments a week almost every week!
Due to my unique conditions, I got a cold and we had to stay in the hospital for 4 days over Valentine's day as I couldn't breathe on my own. This made me sad because I couldn't snuggle my mommy all the time and the bed was not comfy like at home.
Then last week while at a doctors appointment they had to call an ambulance because my oxygen level was too low and after hours of sitting in the ER they told mommy I needed to see a pulmonologist as my lungs arent taking in the right amount of air to get enough up to my brain! They said I stop breathing for a few seconds, more often when I'm sleeping, and that causes my oxygen level to drop. This worries mommy and she checks on me a lot when I'm asleep.
All of these things scare mommy but she's trying her best to make sure I'm taken care of. Daddy is working hard at work and trying to get us our own home as we currently sleep on grandpas couch and as much as I love my grandpa and grandma and uncle's, id really like to have a room of my own and be able to have more one on one time with my family. The other day I heard mommy telling daddy that she read about this device that reads a babies Oxygen level and heart rate and alerts the parents when the baby stops breathing. Thanks to A Really nice lady, that doesn't even know me, the device had arrived and mommy plans to start using it ASAP!
There are lots of things that cost mommy and daddy money that they sometimes dont have like gas for our car for my hospital visists, money for during my hospital stays, money for food for mommy and my big sister when we are going to all my appointments, cleaners and sanitizers to make sure I am kept in as clean an area as possible, upkeep of our car to make sure it's safe to drive me around, a new special car seat with head support cuz right now mine hurts to sit in, special equipment I may need and other things so i am hoping to find my parents some more help to get my family through the tough journey I'm living right now.
So I'm asking you, please Donate and If you can't donate, that's okay, I understand! But please share my story and pray for my health and my family! Thanks for reading!!!!
Love,
Zander
My mommy and daddy found out they were expecting me in April 2015, and they were so excited! As my mommy struggled through her pregnancy they found out that my health wasn't going to be too great and there were lots of unanswered questions throughout mommies pregnancy. I was suppose to be a Christmas miracle but I decided I was ready a little early and arrived at 37 weeks and 6 days! I was born with Extreme Murconium Asperation that led to me having to stay 11 days in the NICU at OHSU because I couldn't breathe without extra oxygen ..... While there I was visited by many doctors and since i was released I still go back to see these special doctors. These doctors include: Cardiologists, opthemologists, ENT's, and a Genetic team. These doctors tell my mommy a lot of big words that I don't understand yet and she cries a lot but then she holds me tight and tells me that everything is going to be okay. I love my mommy, she is so strong and does everything to help me stay comfortable even when I have lots of pain that she can't always make go away. She breast feeds me and though I see her struggling to do So, I am happy she does because it helps me get stronger! She calls me her little Hulk Man. Daddy says I'm special and i love him too! He works a lot and I wish he didn't have to but I know He does it for all of us. I also have three older sister's whom love me so much and I hope I get stronger when I'm older cuz they like to wrestle a lot and have lots of energy that I'll need all the strength I can get just to stay up with them.
So far I have been diagnosed with :
1) Pulmonary Valve Stenosis- which means my heart doesn't pump the right amount of blood to my lungs so I have a hard time breathing.
I also have a Hole and a leak in my heart that my cardiologist , Dr. Garg, is watching very closely. She hoped that my heart would start healing itself but it hasnt yet so I still have to see her every 6 weeks or less until my heart gets better. Mommy said that if it doesn't start getting better or if it gets any worse that they'll have to do surgery and that scares mommy SO MUCH!
2) Extreme Near Sightedness- I can ONLY see a couple inches from my face until May when mommy says I'll get glasses and then maybe I'll be able to see better! The doctor says my eye sight is -8 and says that hopefully with glasses that'll get better! Its also said I have a sign of glaucoma, which is never seen in babies like me and I don't have a reaction I should in the back of my eye but they arent sure if that'll cause any complications or not!
3) I have a Narrow Nasal Passage on the Left side of my nose that makes it very hard to breathe if I get at all congested for any reason.
4) I have some genetic abnormalities that genetics can't yet explain. They couldn't link me to any specific known syndrome but I do have an unknown genetic marker that they've never linked to a syndrome before and they are working on figuring out why I have it and how it affects all my unique conditions seperatly and as a group.
5) I was born with a large Hematoma on my head that took a really long time to get smaller and now they are thinking my skull has grown up into that area. So I go in to see a Craniologist in April to find out when they are going to fix it. They will have to fracture my skull so it can heal properly and I'll have to stay in the hospital with my mommy for a few days when they do.
6) I have weak muscles and some developmental delays that they haven't pin pointed as one thing or another yet but I start physical therapy next week to help my body start to feel better. Hopefully I wont be in so much pain anymore!
As I'm sure you can see, I have a lot of doctors! And these doctors request a lot of tests and appointments that make mommy and I take long trips in the car that I don't really like. I have 1-3 doctors appointments a week almost every week!
Due to my unique conditions, I got a cold and we had to stay in the hospital for 4 days over Valentine's day as I couldn't breathe on my own. This made me sad because I couldn't snuggle my mommy all the time and the bed was not comfy like at home.
Then last week while at a doctors appointment they had to call an ambulance because my oxygen level was too low and after hours of sitting in the ER they told mommy I needed to see a pulmonologist as my lungs arent taking in the right amount of air to get enough up to my brain! They said I stop breathing for a few seconds, more often when I'm sleeping, and that causes my oxygen level to drop. This worries mommy and she checks on me a lot when I'm asleep.
All of these things scare mommy but she's trying her best to make sure I'm taken care of. Daddy is working hard at work and trying to get us our own home as we currently sleep on grandpas couch and as much as I love my grandpa and grandma and uncle's, id really like to have a room of my own and be able to have more one on one time with my family. The other day I heard mommy telling daddy that she read about this device that reads a babies Oxygen level and heart rate and alerts the parents when the baby stops breathing. Thanks to A Really nice lady, that doesn't even know me, the device had arrived and mommy plans to start using it ASAP!
There are lots of things that cost mommy and daddy money that they sometimes dont have like gas for our car for my hospital visists, money for during my hospital stays, money for food for mommy and my big sister when we are going to all my appointments, cleaners and sanitizers to make sure I am kept in as clean an area as possible, upkeep of our car to make sure it's safe to drive me around, a new special car seat with head support cuz right now mine hurts to sit in, special equipment I may need and other things so i am hoping to find my parents some more help to get my family through the tough journey I'm living right now.
So I'm asking you, please Donate and If you can't donate, that's okay, I understand! But please share my story and pray for my health and my family! Thanks for reading!!!!
Love,
Zander

