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Hi everyone - I am fundraising to help Tamerlane with a very rare inherent disease called Nemaline myopathy. He is a very innocent young boy who is 7 years old and lives with his mom and dad in Kazakhstan, Astana (Central Asia). He likes to read books, play lego and spend time on the playground watching other kids play. Unfortunately, the last two years his medical condition worsened - the muscles used for breathing are affected and life-threatening breathing difficulties occur very often. Right now, Tamerlane can breathe only with artificial lung ventilation. Also, due to muscle weakness he has to use wheelchair assistance. The worst part is that the disease is incurable, the only way to extend the boy’s life is to switch ALV every 6 months. I am begging you not to pass by from Tamerlane’s family. I speak with his mom directly and they sold everything they had to pay for ALV, doctor assistance, surgeries, and many other things.
Organizer and beneficiary
Damir Kuanbayev
Beneficiary