Some of you are aware and some are very new to hearing about the very difficult and EXTREMELY RARE diagnosis given to the Lyric Peters, the daughter of my very dear friend, Jade Peters.

Lyric was formally diagnosed on March 10, 2020 with Complex Regional Pain Syndrome (CRPS).

Lyric is presently pursuing treatment at Children’s Healthcare of Atlanta (CHOA).

She was recently admitted to an impatient treatment plan at Egleston's to try and get her some therapy, rehab and relief from the disease.

I have started this GoFundMe for the sole purpose to help Jade stay afloat during this difficult time. As we are all aware of the current events that have put an extreme damper on society. It has caused a complete halt to Jade’s weekly work schedule. Also, Jade is supposed to resume work starting the first week of May but will be unable because she will be at Lyric’s bedside caring for her.

Let me give some elementary insight on how complicated and misunderstood this disease is. CRPS is a debilitating condition that is characterized by severe continuous pain, that may be burning, throbbing, stabbing, aching or feel like pins and needles and is considered the highest rated medical pain on the McGill University Pain Index. It rates above the pain felt in labor, cancer pain and even above the pain of a traumatic amputation. Although you may not see any signs of the pain it is very real, and things change literally from one minute to the next. The exact cause of CRPS is unknown, however it is believed that CRPS occurs as a result of damage to, or a malfunction of the nervous system and the immune system at the site of the injury due to a sprain, surgery, fracture, or illness. Most cases begin in one area, however, in approximately 70% of cases, CRPS spreads to another area of the body and this can include moving internally. You can go into some form of remission at times although this is a life-long diagnosis. The estimated incidence of CRPS is 1.2 per 100,000 children aged 5-15 years old. There is no known cure for CRPS.

Lyric’s flare up started in her left ankle, near the Achilles tendon, after a fracture that occurred in December. It has now started spreading halfway up her lower leg, Lyric has undergone several different types of testing, including X-rays, MRI, blood work, and a nuclear medicine bone scan to finally get a diagnosis. Things have progressively gotten worse and she is now non-weight bearing.

Lyric has been in through rigorous treatments, with zero success or relief. On top of the treatments, she is currently taking numerous new medications to help with the symptoms. Doctors have now decided it is best to place her in an inpatient type treatment where she will be monitored and hopefully be rehabbed to see a normal life again.

Lyric has remained so incredibly humble and happy throughout these traumatic months. It is hard for a nine-year-old to rationally understand why she cannot get up to go outside. It has been nothing short of heartbreaking seeing her push through the struggles, but also watching my best friend endure a pain no mother ever should. I hope and pray that we can get her some relief at CHOA in the next week. Please keep her in your prayers as we are still new to this diagnosis and learning as much as we can at this moment.