Lynnon's Fight: Rare Disorder Support

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1423 donors
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$45,375 raised of $50K

Lynnon's Fight: Rare Disorder Support

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Lynnon is a 2-year-old child with a fatal disease. The goal of this fundraiser is to provide an accessible vehicle for Lynnon and her single father, Dillon, so that they can enjoy the time they have left together.


Hi, my name is Dillon. I am Lynnon's father and we live in Texas. When Lynnon was almost a year old, she was diagnosed with CrelD1 disorder. It is a rare genetic condition that causes cardiac arrest, intractable epilepsy, immune deficiency, muscle tone issues, along with many other issues. For Lynnon, the biggest challenge is the seizures. She has them every day, sometimes multiple times a day, and they can be hours long.


I take care of Lynnon as a single parent and Lynnon’s needs are all encompassing. I take care of her full-time and we spend most of our time at the hospital. I need a new vehicle that can hold all her specialty equipment so we can go and explore the world more in the short amount of time that we have together. currently I drive an old Honda Civic so it's not ideal. The list of things I need help with financially is extensive and seems to be never ending. I would love to show Lynnon more of our world while she is still here to experience its beauty. Thank you for considering supporting my daughter and improving the quality of her short life.

Organizer

Dillon Mccellon
Organizer
Spring, TX
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