Lynne Cullen's Battle with Sezary Syndrome
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Lynne's Story:
Lynne's dream has always been to be a great mom. If you know Lynne, you know she has a special love for kids and is always surrounded by them. She is a child care provider and a wonderful mother to Whitney (23) and Damian (21). So it's no surprise when she remarried, she wanted to have more children. Lynne had her third child, Craig, in 2012 and her fourth child, Corban, in 2014. Shortly after she had Craig she was diagnosed with Cystinuria, a rare genetic kidney disease. Because of this she had to have many surgeries and medications to try and get it to a controlled state. The medications and treatments for this ultimately caused leaky gut syndrome.
Soon she began having skin issues. Doctors thought it was Eczema. They tried many treatments and medications which failed to fix the issue. Because of this she had to be on extensive strict diets, take many supplements and do regular cleanses.
December of 2018 the situation took a turn for the worst. She began to experience extreme break outs with welts, blisters and swelling. She was hospitalized January 18th 2019 at the Grand Forks Altru hospital to do some extensive testing. Preliminary results show she has Sezary Syndrome, a rare aggressive blood cancer: https://ghr.nlm.nih.gov/condition/sezary-syndrome and will need to be transferred to the Mayo Clinic in Rochester to discuss a treatment plan.
Because of this, Lynne has had to quit her job as a child care provider and her husband, Ed Cullen, is unable to work as he is traveling with her for support and help through this difficult time.
How Your Donations Will Help:
Lynne and Ed are in need of help with bills, medical expenses and essential every day care for Craig and Corban while they are trying to work through this tough process and spend this time focusing on her care and recovery. Help her get back to what she loves the most, caring for her children.
Lynne's dream has always been to be a great mom. If you know Lynne, you know she has a special love for kids and is always surrounded by them. She is a child care provider and a wonderful mother to Whitney (23) and Damian (21). So it's no surprise when she remarried, she wanted to have more children. Lynne had her third child, Craig, in 2012 and her fourth child, Corban, in 2014. Shortly after she had Craig she was diagnosed with Cystinuria, a rare genetic kidney disease. Because of this she had to have many surgeries and medications to try and get it to a controlled state. The medications and treatments for this ultimately caused leaky gut syndrome.
Soon she began having skin issues. Doctors thought it was Eczema. They tried many treatments and medications which failed to fix the issue. Because of this she had to be on extensive strict diets, take many supplements and do regular cleanses.
December of 2018 the situation took a turn for the worst. She began to experience extreme break outs with welts, blisters and swelling. She was hospitalized January 18th 2019 at the Grand Forks Altru hospital to do some extensive testing. Preliminary results show she has Sezary Syndrome, a rare aggressive blood cancer: https://ghr.nlm.nih.gov/condition/sezary-syndrome and will need to be transferred to the Mayo Clinic in Rochester to discuss a treatment plan.
Because of this, Lynne has had to quit her job as a child care provider and her husband, Ed Cullen, is unable to work as he is traveling with her for support and help through this difficult time.
How Your Donations Will Help:
Lynne and Ed are in need of help with bills, medical expenses and essential every day care for Craig and Corban while they are trying to work through this tough process and spend this time focusing on her care and recovery. Help her get back to what she loves the most, caring for her children.
Organizer and beneficiary
Crystal Moen
Organizer
Thief River Falls, MN
Lynne Cullen
Beneficiary