- R
- K
中文翻譯請往下拉
Those who know me know will know that over the past 2 years I have struggled tremendously with health issues. Prior to this, I was an optimistic, outgoing, confident, active person who was full of life. With a positive outlook on the future, I was looking forwards to finishing university and starting my new life. Fortunately, for 22 years, I was always very happy and healthy. This all changed on August the 13th, 2018.
On that day, within the space of 5 minutes, in the absence of a trigger, I began to experience intense panic and disconnection from myself and reality. Over the duration of a few months, I began to experience more and more symptoms leaving me bedridden. Some of my symptoms were anxiety/panic attacks, mood issues, brain fog, feeling lost, impulsive dark thoughts, irritability, apathy, severe fatigue, headaches, emotional numbness/lack of feeling, derealisation, unable to recognise myself in the mirror, tinnitus, weight loss, digestion issues, fatigue, insomnia, numbness and tingling, muscle twitching, internal tremors, muscle atrophy and many more. During these months, I saw many doctors, who dismissed me and told me it was "all in my head", as all my blood test showed normal values. This led to referrals with psychologists, psychiatrists, therapists and counsellors. They all concluded that the lack of illness in my family history, as well as the absence of a trigger or any previous trauma, meant I must just be "depressed and anxious" and that I should just "take the meds". Non of them were able to help or provide an answer. It didn't make sense to me and I didn't believe them. There was no reason for me to feel the way I did. I truly believed that I was sick, so I began looking for answers myself.
During the first year after reading countless self help books, by making lifestyle changes (nutrition, meditation, sleep, yoga, stress management more time in nature, herbal medicine and detox etc) I'd feel slightly better. However, it would always get worse again, continuously. Over this last year, my condition has become chronic, the symptoms are debilitating and unbearable. 15 different doctors, many blood tests (including a false negative Lyme disease test on the NHS - January 2020), several false diagnosis's (chronic fatigue, leaky gut, depression, paranoia, anxiety, IBS), a nutritionist, more counsellors, medications and several trips to A&E later led to nothing. After many hours of research, Lyme disease was on my radar. About a year into my illness (August 2019) I requested to be tested at my local GP clinic and the doctor told me that “Lyme disease is the new fad diagnosis in alternative medicine”, therefore she refused to and then it was forgotten about. Then only recently (July 2020), after recognising my display of many clinical symptoms, my functional medicine practitioner suggested that I send a blood sample to a private lab in Germany (ArminLabs) who specialise in tick born infections at my own expense. The results came back positive for Lyme disease (Borrelia) some of it's co-infections (Mycoplasma pneumonia, Epstein Barr, Cytomegalovirus, Coxsackievirus , Echo virus, HSV, VZV). After being house and bed bound for the past 8 months, we have finally found some answers.
Lyme disease is a bacterial infection typically transmitted by ticks. It has 3 stages. Early (1-4 weeks), acute disseminated (4-16 weeks+) and late Lyme disease (months to years - chronic). It known as the “The Great Imitator,” because its symptoms mimic many other diseases. It can affect any organ of the body, including the brain and nervous system, muscles and joints, the heart and the gut. Patients with Lyme disease are frequently misdiagnosed with chronic fatigue syndrome, arthritis, fibromyalgia, multiple sclerosis, and various psychiatric illnesses. If caught early, treatment is much more effective. Unfortunately, many people are misdiagnosed for many years, or never diagnosed as chronic Lyme is a ”controversial topic” that is not properly recognised in the medical literature, and the testing available on the NHS is notoriously unreliable. Even once properly diagnosed, treatment for chronic Lyme disease is again, a controversial topic. The usual prescription is the long term use of multiple strong antibiotics and antimicrobials, this method of treatments is rarely effective and can cause a long list of side effects.
I have attempted the first line of treatment prescribed by a Lyme literate doctor, however it made me much much sicker and landed me in A&E after 10 days. The longer this disease is left untreated, the harder it is to recover. For this reason, I am looking to be treated in Klinik St. George, a Lyme specialised centre in Germany. This clinic offers the highest chance of a full recovery, as opposed to just symptom improvement or remission. They offer several sessions of "Systemic Whole Body Hyperthermia to raise the bodies temperature to 41,6 – 41,8 degrees and then maintain it for two to three hours whilst attacking the infection", in conjunction with an adjuvant therapy program. They are one of the only places in the world that offer this treatment. I have lost a lot due to Lyme, including my independence and I continue to do so, but I hope that things can get better.
The cost of the intensive treatment is upwards of £30,000 for a 4 week stay in the clinic (just been updated on the price), this does not include travel, post-treatment care, supplementation and further appointments. I am grateful for any contribution that anyone can make. Ultimately, the purpose of this is to raise awareness. If you or somebody you know is suffering with a 'mysterious' chronic illness whether it's mental or physical, please DO NOT take the first label a doctor gives you and DO NOT accept it if you truly believe that there is an underlying root cause. Dig deeper, become your own health advocate and listen to your intuition, you know your body better than anyone else.
It has taken me 2 years of suffering and searching to finally find answers after being shrugged off and repeatedly let down by the healthcare system. If I can inspire one other person to find the cause of their potentially unexplainable condition, then it's a happy day. Also, if you have good health, please take care of it. It's something that I very much took for granted and now miss dearly.
Please do not hesitate to contact me if you have any questions.
Thank you for taking the time to read this.
Ewen x
For more information please see:
Lyme Disease
https://globallymealliance.org/
https://lymediseaseuk.com/
https://www.lymedisease.org/
Under Our Skin - Full Lyme Documentary
https://youtu.be/2JgR_Jfbhv8
Klinik St. George - Germany
https://www.klinik-st-georg.de/en/klinik-st-georg/lyme-specialized-center/
https://www.klinik-st-georg.de/en/klinik-st-georg/lyme-specialized-center/lyme-treatment-protocol/
Reliable testing - Armin Labs (Germany) / iGenix (USA)
https://arminlabs.com/en
https://igenex.com/
My Functional Medicine Practitioner (Ruth):
https://www.ifm.org/practitioners/ruth-etches-ruthetchesgmail-com/
(Sick) (Well)
中文翻譯請往下拉
那些了解認識我的人都知道，在過去的兩年中，我在健康上出了很大的問題。在此之前，我是一個充滿活力，樂觀，外向，積極的人。展望未來，我很期待完成大學學業並開始另一個新的生活。但這一切都在2018年8月13日那天發生了變化。那天我正在打工,照顧一群來英國遊學的學生，在不到五分鐘的時間內，沒有前兆的情況下，我開始感到強烈的恐慌，以及感覺自己和現實的脫節。在幾個月的時間裡，我開始經歷許多的症狀，使的我臥床無法起身。我的一些症狀是焦慮、驚恐、失神、煩躁、情緒不穩、感覺喪失及非常強烈的負面思想、對任何事物沒有感覺、嚴重疲勞、頭痛、情緒麻木、缺乏感覺、虛幻、無法在鏡子中認出自己、耳鳴、體重減輕、消化出問題、失眠，麻木和刺痛、肌肉抽搐、體內震顫、肌肉萎縮等等。
在這過程中，我看過許多醫生，但得到的答案都是“我沒病”，而且告訴我這一切都是“我自己幻想出來的”，因為我的所有的血液檢查均顯示在正常值。這使得醫生將我轉診至心理醫生、精神科醫生、治療師和諮詢師。然而都得到了相同的結論。因我沒有相關的家族病史，也沒得過類似的疾病及無引發的因子和也無曾有過的任何創傷，這意味著我就是得到了“憂鬱焦慮症”。所有診斷中沒有一個能幫助我或提供一個正確合理的答案。對我來說這是沒有道理與邏輯的。我不相信他們所給我的結論，因為我沒有理由得到憂鬱焦慮症。我真的相信我自己生病了，由於得不到任何醫生的支持及協助，所以我必須自救，於是我自己摸索尋找我的病源。
在生病的第一年，我的情況時好時壞。慢慢的我的情況變得越來越糟糕，我的負面想法越來越強烈，身心疲累不得以的狀況下，最後我選擇了休學暫停我在大學最後一年的學業。
前後15位不同的醫生，數不完的血液檢查（包括2020年一月時，英國醫院進行的萊姆病檢查也得到了錯誤的結果），幾次錯誤診斷（慢性疲勞，腸漏症，小腸細菌過度生長，抑鬱症，焦慮症，腸易激綜合症），營養師及更多的諮詢師，眾多的藥物和多次的急診室對病情都無所幫助。經過無數小時的自我網路搜尋研究，萊姆病已成我的目標。我患病大約一年後（2019年8月），我要求我的醫生對我的病做萊姆病毒血液檢查，醫生告訴我“萊姆病只是醫學診斷上的新時尚名詞”，因此拒絕了我的請求，之後就不了了之。直到最近，一位功能醫學從業者建議我將血液樣本送到德國的一家私人實驗室（ArminLabs），該實驗室專門研究蜱蝨感染，但需自費。我的血液萊姆病檢驗出來的還有因萊姆病毒所合併的感染結果都呈陽性。在過去8個月的臥床不起生活之後，我終於找到了答案。
萊姆病是通常由蜱蟲叮咬傳播的細菌感染。萊姆病分為3個階段。早期（1-4週）/ 急性播散（4-16週）/ 和晚期萊姆病（數月至數年-慢性），萊姆病它被稱為“偉大的模仿者”，因為它的症狀會模仿許多其他的疾病的症狀。它可以影響身體的任何器官，包括大腦和神經系統，肌肉和關節，心臟和腸道。萊姆病患經常被誤診為慢性疲勞綜合症，關節炎，纖維肌痛，多發性硬化症和各種精神病。如果能提早發現，將得到更有效的治療。不幸的是，很多人被誤診了很多年，因而耽誤治療的時間。萊姆病是一個“有爭議的話題”，在醫學文獻中並未得到正確的認識。不幸的是，由於無法正確識別，許多人被誤診了很多年，英國對此病毒的檢測非常的不準確。即使診斷正確，在治療上也有很大的爭議，而且常常無效。我被確診後即接受了一位萊姆病專科醫生開出的治療方法，沒想到我的情況沒改善反而更惡化，十天後的清晨我再次被送進了急診室。
這種疾病若得不到正當的治療，時間越長就越難康復，因為病毒會侵入身體的各個器官包括大腦，因此我希望我能到德國萊姆病毒（Lyme）專業中心Klinik St. George接受治療。他們的治療不僅僅改善症狀與緩解症狀。相反的，Klinik St. George診所提供最高的完整康復機會。他們使用“全身加熱療法”，將身體溫度升高到41.6°C~ 41.8°C保持兩到三個小時，全身加熱療法攻擊病毒”。Klinik St. George他們是世界上唯一提供這種治療的地方。因為萊姆病毒，我失去了很多，這其中包括我的獨立。若沒能得到正確的治療，我會繼續失去我原本擁有的一切，我希望有了正確的治療後，我的情況會變得更好。
4週強化治療的費用遠遠超過30,000英鎊，這不包括到德國的旅費、治療後的護理、醫藥費及治療後必須再做進一步檢查的醫療費用。任何人做的任何樂捐我都十二萬分的感激。我告訴大家我個人的故事與經歷其最終的目的是，要讓大家對萊姆病毒有較多的認識。如果您或您身邊所認識的親友患有神秘的慢性疾病，無論是精神上的，或是身體上的疾病，請不要讓醫生給您冠上一個你不認同的病名，也不要接受如果您覺得您自己的病是有病源的。在醫生不願意對我的病情深入探討了解及我一再對醫療系統的失望之後，我經歷了兩年生不如死的精神及身心的病痛，我終於尋找到我的最終病源。如果我可以幫助其他人找到他們可能無法解釋的病因，那就是我最快樂的一天。另外，如果您有健康的身體，請您一定要好好照顧自己。有健康的身心是我每天都想得到的，我深深地懷念著。
感謝您花時間看我的經歷
宥郢
更多相關資料
萊姆病
https://globallymealliance.org/
https://lymediseaseuk.com/
https://www.lymedisease.org/
Klinik St. George
https://www.klinik-st-georg.de/en/klinik-st-georg/lyme-specialized-center/
Testing - ArminLabs
https://arminlabs.com/en
Those who know me know will know that over the past 2 years I have struggled tremendously with health issues. Prior to this, I was an optimistic, outgoing, confident, active person who was full of life. With a positive outlook on the future, I was looking forwards to finishing university and starting my new life. Fortunately, for 22 years, I was always very happy and healthy. This all changed on August the 13th, 2018.
On that day, within the space of 5 minutes, in the absence of a trigger, I began to experience intense panic and disconnection from myself and reality. Over the duration of a few months, I began to experience more and more symptoms leaving me bedridden. Some of my symptoms were anxiety/panic attacks, mood issues, brain fog, feeling lost, impulsive dark thoughts, irritability, apathy, severe fatigue, headaches, emotional numbness/lack of feeling, derealisation, unable to recognise myself in the mirror, tinnitus, weight loss, digestion issues, fatigue, insomnia, numbness and tingling, muscle twitching, internal tremors, muscle atrophy and many more. During these months, I saw many doctors, who dismissed me and told me it was "all in my head", as all my blood test showed normal values. This led to referrals with psychologists, psychiatrists, therapists and counsellors. They all concluded that the lack of illness in my family history, as well as the absence of a trigger or any previous trauma, meant I must just be "depressed and anxious" and that I should just "take the meds". Non of them were able to help or provide an answer. It didn't make sense to me and I didn't believe them. There was no reason for me to feel the way I did. I truly believed that I was sick, so I began looking for answers myself.
During the first year after reading countless self help books, by making lifestyle changes (nutrition, meditation, sleep, yoga, stress management more time in nature, herbal medicine and detox etc) I'd feel slightly better. However, it would always get worse again, continuously. Over this last year, my condition has become chronic, the symptoms are debilitating and unbearable. 15 different doctors, many blood tests (including a false negative Lyme disease test on the NHS - January 2020), several false diagnosis's (chronic fatigue, leaky gut, depression, paranoia, anxiety, IBS), a nutritionist, more counsellors, medications and several trips to A&E later led to nothing. After many hours of research, Lyme disease was on my radar. About a year into my illness (August 2019) I requested to be tested at my local GP clinic and the doctor told me that “Lyme disease is the new fad diagnosis in alternative medicine”, therefore she refused to and then it was forgotten about. Then only recently (July 2020), after recognising my display of many clinical symptoms, my functional medicine practitioner suggested that I send a blood sample to a private lab in Germany (ArminLabs) who specialise in tick born infections at my own expense. The results came back positive for Lyme disease (Borrelia) some of it's co-infections (Mycoplasma pneumonia, Epstein Barr, Cytomegalovirus, Coxsackievirus , Echo virus, HSV, VZV). After being house and bed bound for the past 8 months, we have finally found some answers.
Lyme disease is a bacterial infection typically transmitted by ticks. It has 3 stages. Early (1-4 weeks), acute disseminated (4-16 weeks+) and late Lyme disease (months to years - chronic). It known as the “The Great Imitator,” because its symptoms mimic many other diseases. It can affect any organ of the body, including the brain and nervous system, muscles and joints, the heart and the gut. Patients with Lyme disease are frequently misdiagnosed with chronic fatigue syndrome, arthritis, fibromyalgia, multiple sclerosis, and various psychiatric illnesses. If caught early, treatment is much more effective. Unfortunately, many people are misdiagnosed for many years, or never diagnosed as chronic Lyme is a ”controversial topic” that is not properly recognised in the medical literature, and the testing available on the NHS is notoriously unreliable. Even once properly diagnosed, treatment for chronic Lyme disease is again, a controversial topic. The usual prescription is the long term use of multiple strong antibiotics and antimicrobials, this method of treatments is rarely effective and can cause a long list of side effects.
I have attempted the first line of treatment prescribed by a Lyme literate doctor, however it made me much much sicker and landed me in A&E after 10 days. The longer this disease is left untreated, the harder it is to recover. For this reason, I am looking to be treated in Klinik St. George, a Lyme specialised centre in Germany. This clinic offers the highest chance of a full recovery, as opposed to just symptom improvement or remission. They offer several sessions of "Systemic Whole Body Hyperthermia to raise the bodies temperature to 41,6 – 41,8 degrees and then maintain it for two to three hours whilst attacking the infection", in conjunction with an adjuvant therapy program. They are one of the only places in the world that offer this treatment. I have lost a lot due to Lyme, including my independence and I continue to do so, but I hope that things can get better.
The cost of the intensive treatment is upwards of £30,000 for a 4 week stay in the clinic (just been updated on the price), this does not include travel, post-treatment care, supplementation and further appointments. I am grateful for any contribution that anyone can make. Ultimately, the purpose of this is to raise awareness. If you or somebody you know is suffering with a 'mysterious' chronic illness whether it's mental or physical, please DO NOT take the first label a doctor gives you and DO NOT accept it if you truly believe that there is an underlying root cause. Dig deeper, become your own health advocate and listen to your intuition, you know your body better than anyone else.
It has taken me 2 years of suffering and searching to finally find answers after being shrugged off and repeatedly let down by the healthcare system. If I can inspire one other person to find the cause of their potentially unexplainable condition, then it's a happy day. Also, if you have good health, please take care of it. It's something that I very much took for granted and now miss dearly.
Please do not hesitate to contact me if you have any questions.
Thank you for taking the time to read this.
Ewen x
For more information please see:
Lyme Disease
https://globallymealliance.org/
https://lymediseaseuk.com/
https://www.lymedisease.org/
Under Our Skin - Full Lyme Documentary
https://youtu.be/2JgR_Jfbhv8
Klinik St. George - Germany
https://www.klinik-st-georg.de/en/klinik-st-georg/lyme-specialized-center/
https://www.klinik-st-georg.de/en/klinik-st-georg/lyme-specialized-center/lyme-treatment-protocol/
Reliable testing - Armin Labs (Germany) / iGenix (USA)
https://arminlabs.com/en
https://igenex.com/
My Functional Medicine Practitioner (Ruth):
https://www.ifm.org/practitioners/ruth-etches-ruthetchesgmail-com/
(Sick) (Well)
中文翻譯請往下拉
那些了解認識我的人都知道，在過去的兩年中，我在健康上出了很大的問題。在此之前，我是一個充滿活力，樂觀，外向，積極的人。展望未來，我很期待完成大學學業並開始另一個新的生活。但這一切都在2018年8月13日那天發生了變化。那天我正在打工,照顧一群來英國遊學的學生，在不到五分鐘的時間內，沒有前兆的情況下，我開始感到強烈的恐慌，以及感覺自己和現實的脫節。在幾個月的時間裡，我開始經歷許多的症狀，使的我臥床無法起身。我的一些症狀是焦慮、驚恐、失神、煩躁、情緒不穩、感覺喪失及非常強烈的負面思想、對任何事物沒有感覺、嚴重疲勞、頭痛、情緒麻木、缺乏感覺、虛幻、無法在鏡子中認出自己、耳鳴、體重減輕、消化出問題、失眠，麻木和刺痛、肌肉抽搐、體內震顫、肌肉萎縮等等。
在這過程中，我看過許多醫生，但得到的答案都是“我沒病”，而且告訴我這一切都是“我自己幻想出來的”，因為我的所有的血液檢查均顯示在正常值。這使得醫生將我轉診至心理醫生、精神科醫生、治療師和諮詢師。然而都得到了相同的結論。因我沒有相關的家族病史，也沒得過類似的疾病及無引發的因子和也無曾有過的任何創傷，這意味著我就是得到了“憂鬱焦慮症”。所有診斷中沒有一個能幫助我或提供一個正確合理的答案。對我來說這是沒有道理與邏輯的。我不相信他們所給我的結論，因為我沒有理由得到憂鬱焦慮症。我真的相信我自己生病了，由於得不到任何醫生的支持及協助，所以我必須自救，於是我自己摸索尋找我的病源。
在生病的第一年，我的情況時好時壞。慢慢的我的情況變得越來越糟糕，我的負面想法越來越強烈，身心疲累不得以的狀況下，最後我選擇了休學暫停我在大學最後一年的學業。
前後15位不同的醫生，數不完的血液檢查（包括2020年一月時，英國醫院進行的萊姆病檢查也得到了錯誤的結果），幾次錯誤診斷（慢性疲勞，腸漏症，小腸細菌過度生長，抑鬱症，焦慮症，腸易激綜合症），營養師及更多的諮詢師，眾多的藥物和多次的急診室對病情都無所幫助。經過無數小時的自我網路搜尋研究，萊姆病已成我的目標。我患病大約一年後（2019年8月），我要求我的醫生對我的病做萊姆病毒血液檢查，醫生告訴我“萊姆病只是醫學診斷上的新時尚名詞”，因此拒絕了我的請求，之後就不了了之。直到最近，一位功能醫學從業者建議我將血液樣本送到德國的一家私人實驗室（ArminLabs），該實驗室專門研究蜱蝨感染，但需自費。我的血液萊姆病檢驗出來的還有因萊姆病毒所合併的感染結果都呈陽性。在過去8個月的臥床不起生活之後，我終於找到了答案。
萊姆病是通常由蜱蟲叮咬傳播的細菌感染。萊姆病分為3個階段。早期（1-4週）/ 急性播散（4-16週）/ 和晚期萊姆病（數月至數年-慢性），萊姆病它被稱為“偉大的模仿者”，因為它的症狀會模仿許多其他的疾病的症狀。它可以影響身體的任何器官，包括大腦和神經系統，肌肉和關節，心臟和腸道。萊姆病患經常被誤診為慢性疲勞綜合症，關節炎，纖維肌痛，多發性硬化症和各種精神病。如果能提早發現，將得到更有效的治療。不幸的是，很多人被誤診了很多年，因而耽誤治療的時間。萊姆病是一個“有爭議的話題”，在醫學文獻中並未得到正確的認識。不幸的是，由於無法正確識別，許多人被誤診了很多年，英國對此病毒的檢測非常的不準確。即使診斷正確，在治療上也有很大的爭議，而且常常無效。我被確診後即接受了一位萊姆病專科醫生開出的治療方法，沒想到我的情況沒改善反而更惡化，十天後的清晨我再次被送進了急診室。
這種疾病若得不到正當的治療，時間越長就越難康復，因為病毒會侵入身體的各個器官包括大腦，因此我希望我能到德國萊姆病毒（Lyme）專業中心Klinik St. George接受治療。他們的治療不僅僅改善症狀與緩解症狀。相反的，Klinik St. George診所提供最高的完整康復機會。他們使用“全身加熱療法”，將身體溫度升高到41.6°C~ 41.8°C保持兩到三個小時，全身加熱療法攻擊病毒”。Klinik St. George他們是世界上唯一提供這種治療的地方。因為萊姆病毒，我失去了很多，這其中包括我的獨立。若沒能得到正確的治療，我會繼續失去我原本擁有的一切，我希望有了正確的治療後，我的情況會變得更好。
4週強化治療的費用遠遠超過30,000英鎊，這不包括到德國的旅費、治療後的護理、醫藥費及治療後必須再做進一步檢查的醫療費用。任何人做的任何樂捐我都十二萬分的感激。我告訴大家我個人的故事與經歷其最終的目的是，要讓大家對萊姆病毒有較多的認識。如果您或您身邊所認識的親友患有神秘的慢性疾病，無論是精神上的，或是身體上的疾病，請不要讓醫生給您冠上一個你不認同的病名，也不要接受如果您覺得您自己的病是有病源的。在醫生不願意對我的病情深入探討了解及我一再對醫療系統的失望之後，我經歷了兩年生不如死的精神及身心的病痛，我終於尋找到我的最終病源。如果我可以幫助其他人找到他們可能無法解釋的病因，那就是我最快樂的一天。另外，如果您有健康的身體，請您一定要好好照顧自己。有健康的身心是我每天都想得到的，我深深地懷念著。
感謝您花時間看我的經歷
宥郢
更多相關資料
萊姆病
https://globallymealliance.org/
https://lymediseaseuk.com/
https://www.lymedisease.org/
Klinik St. George
https://www.klinik-st-georg.de/en/klinik-st-georg/lyme-specialized-center/
Testing - ArminLabs
https://arminlabs.com/en
Organizer
Ewen Collier
Organizer