L-W-O Community #Seven

This September L-W-O Community celebrates its 7th anniversary this was due to me being diagnosed with Secondary lymphoedema as a direct result of radiotherapy treatment. At the time I found very few places to turn to and although in the early days I had support for treatment it was difficult to find information.  After researching and gathering information I identified a need for people like me to have a place to go where I could talk to someone everyday if I needed.  Starting with a Facebook page and website for LWO community Primary Secondary Paediatric Lymphoedema  under the heading of ‘lymph-what-oedema’ we soon adopted the acronym L-W-O.  Seven years on we have become L-W-O Community with a high social media presence.  Our aims:


·         Support those living with lymphoedema

·         Encouraging patient advocacy

·         Raise awareness

·         Provide non-medical tips

·         Share news and research


L-W-O Community receives no official funding and financially things have been tough due to Covid-19 during 2020 and donations have almost dried up apart from a few loyal supporters who have kept us going.  Twice this year I have had to pay bills out of my own personal finances.  Prior to this year fundraising has always been kept within our community and for this I am profoundly grateful.  I am now asking the wider community to support us.  With our 7th anniversary in mind we are asking for donations of £7.00 or whatever you can afford, please help us to maintain our service for those living with lymphoedema through our websites, support groups and social media. 


Gaynor Leech
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