My name is Maddie and I am writing this on behalf of my only daughter Luna. Luna is a 2 and half year old little girl, who somehow continues to fight with a smile on her face always. Luna had always been a little slower meeting milestones, about a year ago we brought her in because she wasn't talking. I quit my job and did everything possible to catch her up. We were transferred in to Rady's Children's Hospital and within months we saw more regressions. Her muscles got weaker, she stopped crawling, couldn't stand or sit on her own. We started occupational therapy and physical therapy. We started infant education, behavior therapy, feeding therapy. We've been threw multiple doctors that have prescribed baby formulas and wheelchairs. Luna started having seizures in October and has rapidly declined on multiple medications, sedatives and doctors that continued to ignore our begging and pleading for help. We have fallen behind on bills as I have been out of work for 9 months trying to save our daughter while trying to pay for medical equipment, medications that doctors prescribe without telling you what insurance covers and doesn't cover, moving to a first-floor apartment (as she cannot handle stairs, etc.) Luna now has new side effects from all this medication and we are hoping to raise money for second opinions, specialty doctors, medical equipment, and medications (emergency seizure meds are $768 and because she is so young it's made to order which means insurance doesn't cover.) Luna deserves doctors that care and a fighting chance to live a life worth living. Kyle, Luna and I thank you guys all so much for reading our story and helping. If anybody has any information on doctors, medical research, or any other resources please feel free to reach out. Please share out story, all we want is answers for our daughter. After 9 months of MRIs, EEGs, EKGs, multiple hospital stays, evaluations, therapies, thousands of dollars and endless suffering we have zero formal diagnoses. Thank you so much for everybody reading this far and our whole family appreciates any help.