Main fundraiser photo

Lukes AFM Nerve transfer surgery

Donation protected
In September 2016 , Luke was a typical 10 year old and quarterback of his football team. He came down with a cold and fever. After about 3 days he complained of double vision , stiff neck, and a weak arm.
  I took him to his Pediatrician she immediately had him go by ambulance to the hospital for a spinal tap. He was diagnosed with viral meningitis and the Doctors believed he would recover 100%.
Unfortunately instead of getting better he continued to decline. He eventually was paralyzed from the waist up. He had multiple surgeries . He had a feeding tube, a tracheotomy, blood clots on and on. We found out from the CDC he had Accute Flaccid Myelitis . It was devastating  He eventually relearned to walk, talk while in PICU for 3 months. 
He has had 2 years worth of physical and speech therapy. Luke came off his ventilator and had his trach removed last November. He returned to school in January. He just had surgery last month to repair the scar tissue from his tracheotomy.  The final issue is he has not recovered use of his left arm. This causes many challenges and affects his  quality of life. 
  With the recent surge in News Coverage on AFM  we have seen a Doctor at Children’s Hospital Los Angeles. 
He has evaluated
Luke and found him to be a candidate for a very complicated nerve surgery which would hopefully give him use of his left arm and shoulder again. This surgery would be the final chapter in his long and exhausting road to recovery.
   Unfortunately our insurance does not cover this. We will be changing insurance to a PPO and will need the Maximum out of pocket to get the surgery.
 Any amount would help we will be using the money to pay the out of pocket maximum and for gas and his subsequent Physical Therapy since all appointments will be in Hollywood. We would be so grateful for any support as this could be the final chapter of recovery. The surgery is in January. Anything would help. Thank you so much. 
Alex & Jolene
Donate

Donations 

    Donate

    Organizer

    Jolene Kuty
    Organizer
    Santa Clarita, CA

    Your easy, powerful, and trusted home for help

    • Easy

      Donate quickly and easily

    • Powerful

      Send help right to the people and causes you care about

    • Trusted

      Your donation is protected by the GoFundMe Giving Guarantee