The tumour is housed in her rib cage and the cancer has spread to her pelvis, shoulders and the base of her skull. Lucy is currently undergoing chemotherapy supported by the fantastic team at Royal Manchester Children’s Hospital. The treatment plan is gruelling and will take 12 months for Lucy to hopefully achieve remission. Lucy has just finished her second course of radiotherapy treatment at University College Hospital (UCLH) where she was looked after by a fantastic team of staff. In the next couple of weeks, the family will be heading to Southampton which Lucy has been accepted by Dr Julie Gray onto the MiNivAN Trial at University Hospital.
Neuroblastoma is an aggressive form of cancer and has the second highest mortality rate in children second only to leukaemia. Despite the gruelling treatment regime, the statistics show that 50% / 60% of neuroblastoma children risk relapsing within 2 years of achieving remission. Sadly, there is currently no cure for relapse neuroblastoma and the survival rate for relapsed patients is as low as 1 in 10 children.
Across the pond in the USA, advances in paediatric oncology show that a 2-year treatment on a drug known as DFMO is showing positive results and keeping children in remission, raising the 60 % remission rate to a staggering 84%. Whilst still in its trial stages, the results speak for themselves.
To give Lucy the best possible opportunity for the future she deserves, her parents, Carrie and Richard plan to enrol Lucy on the study at Helen DeVos Children’s Hospital in Michigan. Once Lucy finishes her treatment in the UK and has achieved remission, the family have been told that the hospital will be willing to accept Lucy onto their trial. This is fantastically positive news for the family and gives them hope for Lucy’s future but comes at a cost.
Amber Family are proud to be leading on the fundraising campaign to get Lucy over to Michigan.
“Lucy’s Mission to Michigan” has been launched! Over the next 12-months, staff at Amber Family, other colleagues and members of Carrie and Richard’s family and friends hope to hit the target of £60k that will be needed to treat Lucy in Michigan.
If you can help with fundraising, donations or would be interested in attending any of the “Lucy’s Mission to Michigan” events, then please e-mail us at; [email redacted].uk
On behalf of Lucy, Carrie, Richard and Lucy’s brother Sam, thank you in advance for your time and support.
You can also follow Lucy’s story so far on her Facebook page – www.Facebook.com / Lucy’s Mission
This fundraising page has been set up by Carol Benbow, Director of Amber Family Ltd., and friend of Carrie, Lucy's Mum. The funds will be used to pay for Lucy's treatment in Michigan and will be withdrawn into the Amber Family Fundraising Account and these will be drawn down on by Carrie and Richard once Lucy is in remission and travel arrangements are being made for her journey to Michigan.