- S
- L
It's a little known story but it is time that we tell it. We have been blessed with two of the most beautiful, unique, and just plain pleasant children that anyone could ever ask for (yes I know I am bias being their mother and all, but who wouldn't be?). Dylan and myself have our little boy Charlie who is, to us and anyone who knows what we have been through in the past 3 years, an absolute miracle/angel from heaven. He was an amazing first baby to have and we are so incredibly lucky to have him. He contiues to be amazing as a big brother to our sweet little miss Lucy; who is by far the happiest, and most curious/observant baby I have ever met!
I have always been and will forever be a firm believer in the fact that everything happens for a reason and that we are never given anything that we cannot handle. Ever since Charlie was born events have continued to happen that have made that belief even more concrete in my heart of hearts and was not once shaken when we were given Lucy and told, at only a month old, that she had hearing loss. When Lucy was born she failed her newborn hearing test(to fail this test is very common in newborns due to fluid from birth having not fulling drained from their ears). Knowing that this was more common then not, Dylan and I didn't think much of it and simply did our part to take Lucy to an audioligist a month after birth to retest her. By about a month and a half old Lucy had failed the newborn hearing test 5 times and was now getting ready to be tested more extensively because there was, in fact, no fluid in her ears and all of her "hearing structures" were fully in tact and formed properly. By this point in the process, as you can imagine, as parents we were a little more concerned. We were told that we would have to get an appointment with Johns Hopkins in order to test all different frequencies in bith of her ears to find out, not if she had hearing loss, but just how bad te hearing loss actually was. it took almost 2 months of us waiting for our appointment, but were finally called in and have the results. In her left ear she has mild/moderate hearing loss for low and medium frequencies (drum beats, people talking in lower tones, etc.) and severe hearing loss in higher frequencies (birds chirping, whistling, etc.). In the right ear we were informed that her hearing loss was considered profound to a total loss on all frequencies. The type of hearing loss that Lucy has is called sensorineural. There are two main types of hearing loss, that which she has and conductive. The difference between the 2 is that conductive has to do with structure and physical being, whereas sensorineural has to do with one's genetic and chromosomal make-up. The other difference is that conductive can be fixed through surgery and reconstructions and sensorineural cannot. What Lucy has can only be "helped" or aided through hearing aids and/or cochlear implants. As I said before I am a firm believer that everything happens for a reason and we were given this beautiful girl exactly the way she is for a reason and whatever challenge we face with Lucy having this hearing loss will never be too much for us to handle! We are doing our part in learning sign language and taking advantage of all of our resources in order to help Lucy as much as we possibly can. Tomorrow we go to get her ears molded to get her hearing aids made and I don't doubt for one second that we will do whatever we need to do in order to give Lucy every possibly aid, so to speak, that we can. with that being said, this is why I made this GOFUNDME page. As much as we can do unfortunatily might not be enough financially. Even with the help of insurance, these hearing aids will still be a very big expense for us and that is why I am telling you this whole story. Dylan and I would like to ask for help from friends and family. Anything and everything that can be given will be such a huge help for us and we have/do/will continue to be eternally greatful for all of the support received.
I have always been and will forever be a firm believer in the fact that everything happens for a reason and that we are never given anything that we cannot handle. Ever since Charlie was born events have continued to happen that have made that belief even more concrete in my heart of hearts and was not once shaken when we were given Lucy and told, at only a month old, that she had hearing loss. When Lucy was born she failed her newborn hearing test(to fail this test is very common in newborns due to fluid from birth having not fulling drained from their ears). Knowing that this was more common then not, Dylan and I didn't think much of it and simply did our part to take Lucy to an audioligist a month after birth to retest her. By about a month and a half old Lucy had failed the newborn hearing test 5 times and was now getting ready to be tested more extensively because there was, in fact, no fluid in her ears and all of her "hearing structures" were fully in tact and formed properly. By this point in the process, as you can imagine, as parents we were a little more concerned. We were told that we would have to get an appointment with Johns Hopkins in order to test all different frequencies in bith of her ears to find out, not if she had hearing loss, but just how bad te hearing loss actually was. it took almost 2 months of us waiting for our appointment, but were finally called in and have the results. In her left ear she has mild/moderate hearing loss for low and medium frequencies (drum beats, people talking in lower tones, etc.) and severe hearing loss in higher frequencies (birds chirping, whistling, etc.). In the right ear we were informed that her hearing loss was considered profound to a total loss on all frequencies. The type of hearing loss that Lucy has is called sensorineural. There are two main types of hearing loss, that which she has and conductive. The difference between the 2 is that conductive has to do with structure and physical being, whereas sensorineural has to do with one's genetic and chromosomal make-up. The other difference is that conductive can be fixed through surgery and reconstructions and sensorineural cannot. What Lucy has can only be "helped" or aided through hearing aids and/or cochlear implants. As I said before I am a firm believer that everything happens for a reason and we were given this beautiful girl exactly the way she is for a reason and whatever challenge we face with Lucy having this hearing loss will never be too much for us to handle! We are doing our part in learning sign language and taking advantage of all of our resources in order to help Lucy as much as we possibly can. Tomorrow we go to get her ears molded to get her hearing aids made and I don't doubt for one second that we will do whatever we need to do in order to give Lucy every possibly aid, so to speak, that we can. with that being said, this is why I made this GOFUNDME page. As much as we can do unfortunatily might not be enough financially. Even with the help of insurance, these hearing aids will still be a very big expense for us and that is why I am telling you this whole story. Dylan and I would like to ask for help from friends and family. Anything and everything that can be given will be such a huge help for us and we have/do/will continue to be eternally greatful for all of the support received.

