Adelene (Addy) was diagnosed earlier this year with Epilespy after experiencing several tonic clonic seizures. While doing all the recommended tests such as an MRI, a tumor was found in her head. After a biopsy was done we got the diagnosis. Addy has a rare disease called Histiosistos Juvenile Xangranduloma. Her tumor is in a location where it can’t be removed, so we are on a year journey of chemotherapy. She is doing well thanks to the amazing team of doctors, nurses, and staff at Texas Children's Hospital. She has weekly labs and goes impatient once a month for a week to do her chemo.
She also has a great support group on Facebook called Loving Addy if you'd like more ways to cheer her on!
- Dyea Reynolds
- Kelly Fleet
- Jacquita Williams
- Debra Hutton
Organizer and beneficiary
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