Help Emma fight Batten Disease CLN2

We would like to reach out to our family, friends and everyone in between to help us fight a rare disease that Emma has been diagnosed with. The disease is called Batten Disease type CLN2. This news is devastating for our family. We never expected anything like this to happen to Emma, as she is a happy, vibrant, and an amazing little girl. She is 3.5 years old, and was just diagnosed after having her first seizure that came out of nowhere. We can’t begin to wrap our minds around this. We truly would appreciate anyone's help to fight this disease and possibly search for a cure for Emma and all others within the same fight. This disease has only 1 FDA treatment called Brineura, and it is a biweekly invasive treatment. Treatments and studies related to Batten Disease are not covered by insurance, so again, any help for Emma will be greatly appreciated.


God bless you all!

Eric and Kirstie

  • Pat Bow 
    • $100 
    • 24 d
  • Abbey Barnosky 
    • $10 
    • 25 d
  • Anonymous 
    • $20 
    • 1 mo
  • Holly Simonton 
    • $20 
    • 1 mo
  • Bryce Conway 
    • $20 
    • 1 mo
See all

Organizer

Eric Austin 
Organizer
Newark, TX
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