Love For Livie From Penneys Athlone

Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1.  SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles.   Without any treatment, Livie’s condition will continue to deteriorate and it is unlikely that she would live past her 2nd birthday. The best hope for a better life for Livie is a once-off gene therapy called Zolgensma, which is currently only available in USA. It is the worlds most expensive treatment at a cost of US$2,100,000.  Livie's antibody test qualifies her for the treatment but we are against the clock as Zolgensma is only available to children under the age of two years. What are we doing?..... Our Colleagues will all be wearing Pink in our Store over the August Bank Holiday Weekend to raise awareness and where possible make a contribution to our Go Fund Me Page For Livie. All donations, big or small, will make a huge difference in helping the family reach their $2.1m goal!!!