Love for JessRS & Family!
Donation protected
UPDATE (Aug 16th, 2023):
Hello dear supporters of Jess and her family! It’s been a long while since we’ve shared an update here on GoFundMe, so I wanted to pop in and share an update and some important news with all of you! The Salzman family has had many major surgeries, outpatient procedures, and numerous hospital stays since our original fundraising; along with central line exchanges, countless PT sessions, multiple trips to NY for upright MRIs, and—quite notably—Jess survived septicemia/bacteremia and a very complex life-threatening complication called DRESS Syndrome in early 2022.
Recently Jess learned that she too will need to undergo the same brain surgery that both kids needed. Her big day is this coming Thursday, August 17th. She’s very thankful that Dr. Klinge will be performing this surgery, which is a Chiari Malformation decompression surgery requiring an automatic ICU admission. Having supported both kids through this previously, Jess feels well prepared and eager to be on the path to even greater wellness soon!
As you can imagine, the extensive medical costs incurred over the years have been immense and therefore any contribution you feel called to make will be put to excellent use and greatly appreciated too!
Although we have not currently updated the fundraising goal amount, as Jess’s support team, we deeply hope to make as much positive impact as possible to lessen the stress of everyday life and help her along on her healing journey! Please consider giving again. Your generosity would be a fantastic Godsend for Jess and her family.
And while your monetary support is so greatly appreciated, your positive prayers and support of all kinds will be an encouragement beyond words to Jess and her family! Please feel welcome to write your prayers and notes filled with love anywhere you can find Jess. Whether it is here, on Facebook or in the private groups or spaces you might be a part of. Jess is theeee strongest, most positive and loving woman I know. But sometimes even the most resilient benefit from a little extra TLC during extraordinary times!
May you be blessed. Thank you for loving our dear Jess the way you do!
~~~~
Beginning in the fall of 2015, Jessica Reagan Salzman stepped into a deep journey of fighting not only for her health, but her life. As the journey has continued, she and her husband, Michael, also began walking an all-too-similar path alongside their two teenage daughters.
Despite everything, Jess has remained a powerhouse of positivity. In this regard, she has much to teach most of us! And she does. It seems that no matter how many hospital beds she has been forced to lay in, there is ALWAYS light shining through a nearby window with Jess soaking up its glow!
With all our hearts, we invite you to become a part of the Salzman family with the light of your love as well as your financial support.
The Journey: It’s been MORE THAN adventurous, to say the least!
By January 2016, health-wise, things became incredibly difficult for Jess, including a long hospitalization followed by another series of lengthy hospital stays. Nearly dying August through October of that same year, Jess was hardly able to catch a breath before facing additional ER visits and hospital stays.
In 2017, Jess underwent a series of surgeries and procedures. However, despite all the best efforts of Jess and her medical team, in the fall of 2018, after an acute and severe episode, things became much more chronic. It has been very challenging on a much more frequent basis ever since!
Jess has also undergone multiple surgeries for severe gynecological disease and adhesive disease on top of all the other health issues. 2020 was the first year in five years that Jess did not have any surgery!
After finding clues in previous medical records, it was discovered that a doctor’s suspicion of a rare syndrome could potentially explain her symptoms as well as why her gallbladder had ceased functioning in 2016.
FINALLY, in January 2020, Jess was diagnosed with a particularly rare GI Syndrome called Superior Mesenteric Artery (SMA) Syndrome and, in February 2020, was also diagnosed with a genetic condition, Ehlers-Danlos Syndrome (EDS). (SMAS is a rare gastro-vascular illness that affects between .013 and .3% of the world’s population.)
In March 2020–one week into the COVID pandemic lockdown—Jess had a central line placed to manage chronic dehydration and malnutrition caused by these syndromes. The procedure wasn’t without a very rare complication, but Jess stayed calm and strong and was joyously able to return home. Daily home infusions made it possible to avoid any ER visits for the remainder of 2020.
She has done everything in her power to avoid being hospitalized during this pandemic. However, she has been borderline ER/admission since September. Despite Jess’s best efforts to stay OUT of hospitals during this time, earlier this year, in 2021, she was once again admitted into the ER due to a complex cyst on her right ovary which was causing strange symptoms and incredible amounts of pain.
Jess and Michael have also been supporting both of their teenage daughters throughout this time. Like Jess, they’ve both been diagnosed with Endometriosis/Endosalpingiosis and both have Ehlers-Danlos Syndrome (EDS). In July, their eldest daughter had neurosurgery to release her tethered spinal cord, which is related to having EDS.
The Road Ahead: Love is strength. None of us are meant to go it alone!
Up until now, Jess and her family have been managing the challenge of her and her two children’s medical situations on their own. They are a resilient and hard working bunch!
However, now that that Jess’s condition has become more pervasive, it is becoming more difficult to stay strong. The SMA Syndrome (SMAS) has progressed and Jess’s symptoms are now disrupting her life on a daily basis.
On top of helping Jess and her family cover the cost of medical expenses incurred over the past 5+ years—which is a considerable amount!—our fundraising efforts will also help to bring Jess a sliver of ease in all that lies ahead as well.
Jess will also very likely need out-of-network medical treatment either in Florida, Texas or Germany. Because of the rarity of these syndromes and the need to work with a surgeon who is not only caring and dedicated to helping SMAS patients, Jess will also need a surgeon who has experience with the best suited surgical techniques for her situation.
The cost of treating this condition could be substantial in the near future, including travel costs, a long recovery, and an unwavering commitment to keeping her business, Heart Based Bookkeeping, up-and-running while managing this whole process.
The Need: Our good friend could use a little help!
Your donation to this fundraiser will help to cover:
**Current Medical Insurance Premium: $18K/per year
**Deductible & Out-of-Pocket Medical Costs: $15K/per year
**Additional Medical Expenses including:
--Out-of-Network medical treatment in Florida or Texas
--Non-Covered medical services in Germany
--Related travel expenses
--Holistic Support and Supplements
**Space for JOY and a little financial breathing room!
Being chronically ill can bring its own kind of stress. Jess is NEVER the type to give in or give up! She teaches us over and over again that we can thrive under any circumstances. Even so, now is the time to pour LOVE into Jess by helping to give her a little extra financial strength so that she might more fully and easily focus her efforts in the direction of healing.
Jess is a pillar of strength in every aspect of life, when it comes to her own health journey, as well as the way she stands alongside everyone around her (whether it be her family, her friends or her clients)! But sometimes it is the strongest people who need support the most. She has been a rock of support to many of us, and now it is time to gather around and be that support for her.
Jessica Reagan Salzman is the direct beneficiary of all donations raised by this fundraiser! To make an offline contribution to this campaign, please feel free to contact Jess directly. Thank you so much for your support of Jess and her family!
Hello dear supporters of Jess and her family! It’s been a long while since we’ve shared an update here on GoFundMe, so I wanted to pop in and share an update and some important news with all of you! The Salzman family has had many major surgeries, outpatient procedures, and numerous hospital stays since our original fundraising; along with central line exchanges, countless PT sessions, multiple trips to NY for upright MRIs, and—quite notably—Jess survived septicemia/bacteremia and a very complex life-threatening complication called DRESS Syndrome in early 2022.
Recently Jess learned that she too will need to undergo the same brain surgery that both kids needed. Her big day is this coming Thursday, August 17th. She’s very thankful that Dr. Klinge will be performing this surgery, which is a Chiari Malformation decompression surgery requiring an automatic ICU admission. Having supported both kids through this previously, Jess feels well prepared and eager to be on the path to even greater wellness soon!
As you can imagine, the extensive medical costs incurred over the years have been immense and therefore any contribution you feel called to make will be put to excellent use and greatly appreciated too!
Although we have not currently updated the fundraising goal amount, as Jess’s support team, we deeply hope to make as much positive impact as possible to lessen the stress of everyday life and help her along on her healing journey! Please consider giving again. Your generosity would be a fantastic Godsend for Jess and her family.
And while your monetary support is so greatly appreciated, your positive prayers and support of all kinds will be an encouragement beyond words to Jess and her family! Please feel welcome to write your prayers and notes filled with love anywhere you can find Jess. Whether it is here, on Facebook or in the private groups or spaces you might be a part of. Jess is theeee strongest, most positive and loving woman I know. But sometimes even the most resilient benefit from a little extra TLC during extraordinary times!
May you be blessed. Thank you for loving our dear Jess the way you do!
~~~~
Beginning in the fall of 2015, Jessica Reagan Salzman stepped into a deep journey of fighting not only for her health, but her life. As the journey has continued, she and her husband, Michael, also began walking an all-too-similar path alongside their two teenage daughters.
Despite everything, Jess has remained a powerhouse of positivity. In this regard, she has much to teach most of us! And she does. It seems that no matter how many hospital beds she has been forced to lay in, there is ALWAYS light shining through a nearby window with Jess soaking up its glow!
With all our hearts, we invite you to become a part of the Salzman family with the light of your love as well as your financial support.
The Journey: It’s been MORE THAN adventurous, to say the least!By January 2016, health-wise, things became incredibly difficult for Jess, including a long hospitalization followed by another series of lengthy hospital stays. Nearly dying August through October of that same year, Jess was hardly able to catch a breath before facing additional ER visits and hospital stays.
In 2017, Jess underwent a series of surgeries and procedures. However, despite all the best efforts of Jess and her medical team, in the fall of 2018, after an acute and severe episode, things became much more chronic. It has been very challenging on a much more frequent basis ever since!
Jess has also undergone multiple surgeries for severe gynecological disease and adhesive disease on top of all the other health issues. 2020 was the first year in five years that Jess did not have any surgery!
After finding clues in previous medical records, it was discovered that a doctor’s suspicion of a rare syndrome could potentially explain her symptoms as well as why her gallbladder had ceased functioning in 2016.
FINALLY, in January 2020, Jess was diagnosed with a particularly rare GI Syndrome called Superior Mesenteric Artery (SMA) Syndrome and, in February 2020, was also diagnosed with a genetic condition, Ehlers-Danlos Syndrome (EDS). (SMAS is a rare gastro-vascular illness that affects between .013 and .3% of the world’s population.)
In March 2020–one week into the COVID pandemic lockdown—Jess had a central line placed to manage chronic dehydration and malnutrition caused by these syndromes. The procedure wasn’t without a very rare complication, but Jess stayed calm and strong and was joyously able to return home. Daily home infusions made it possible to avoid any ER visits for the remainder of 2020.
She has done everything in her power to avoid being hospitalized during this pandemic. However, she has been borderline ER/admission since September. Despite Jess’s best efforts to stay OUT of hospitals during this time, earlier this year, in 2021, she was once again admitted into the ER due to a complex cyst on her right ovary which was causing strange symptoms and incredible amounts of pain.
Jess and Michael have also been supporting both of their teenage daughters throughout this time. Like Jess, they’ve both been diagnosed with Endometriosis/Endosalpingiosis and both have Ehlers-Danlos Syndrome (EDS). In July, their eldest daughter had neurosurgery to release her tethered spinal cord, which is related to having EDS.
The Road Ahead: Love is strength. None of us are meant to go it alone!Up until now, Jess and her family have been managing the challenge of her and her two children’s medical situations on their own. They are a resilient and hard working bunch!
However, now that that Jess’s condition has become more pervasive, it is becoming more difficult to stay strong. The SMA Syndrome (SMAS) has progressed and Jess’s symptoms are now disrupting her life on a daily basis.
On top of helping Jess and her family cover the cost of medical expenses incurred over the past 5+ years—which is a considerable amount!—our fundraising efforts will also help to bring Jess a sliver of ease in all that lies ahead as well.
Jess will also very likely need out-of-network medical treatment either in Florida, Texas or Germany. Because of the rarity of these syndromes and the need to work with a surgeon who is not only caring and dedicated to helping SMAS patients, Jess will also need a surgeon who has experience with the best suited surgical techniques for her situation.
The cost of treating this condition could be substantial in the near future, including travel costs, a long recovery, and an unwavering commitment to keeping her business, Heart Based Bookkeeping, up-and-running while managing this whole process.
The Need: Our good friend could use a little help!
Your donation to this fundraiser will help to cover:
**Current Medical Insurance Premium: $18K/per year
**Deductible & Out-of-Pocket Medical Costs: $15K/per year
**Additional Medical Expenses including:
--Out-of-Network medical treatment in Florida or Texas
--Non-Covered medical services in Germany
--Related travel expenses
--Holistic Support and Supplements
**Space for JOY and a little financial breathing room!
Being chronically ill can bring its own kind of stress. Jess is NEVER the type to give in or give up! She teaches us over and over again that we can thrive under any circumstances. Even so, now is the time to pour LOVE into Jess by helping to give her a little extra financial strength so that she might more fully and easily focus her efforts in the direction of healing.
Jess is a pillar of strength in every aspect of life, when it comes to her own health journey, as well as the way she stands alongside everyone around her (whether it be her family, her friends or her clients)! But sometimes it is the strongest people who need support the most. She has been a rock of support to many of us, and now it is time to gather around and be that support for her.
Jessica Reagan Salzman is the direct beneficiary of all donations raised by this fundraiser! To make an offline contribution to this campaign, please feel free to contact Jess directly. Thank you so much for your support of Jess and her family!
Co-organizers (7)
Jessie Marianiello
Organizer
Attleboro, MA
Jessica Reagan Salzman
Beneficiary
Helen Reagan
Co-organizer
Michael J. Salzman
Co-organizer
Rachel Davis
Co-organizer
Derek Holmes
Co-organizer