
Love for Esang, a tetra-amelia syndrome patient
Hello everyone, I am Jasmin Verushka Via Jamias. Someone knocked at my heart for help but despite my heart's desire to help, I just lack the resources at the moment.  So please let me knock at your hearts in behalf of her. Jessamine Sagun Samalio or simply  known to close friends and familes  as  Esang was born on  December 15,1989. She was born with  one of the rarest disorder   Tetra-amelia syndrome   , characterized by the absence of all four limbs. But despite such fateful condition, she remains a constant source of happiness to the family as she is naturally bubbly and exuberant.   Esang extraordinarily exudes happiness amd goodwill to the whole community. She is blessed to  have survived this long as most people with such condition  either are stillbotn or die shortly because of so many serious medical problems brought about by the syndrome. In   hope to reciprocate the  smiles she brings to  people around her, we wish to give her a little comfort  by letting her  have extra  freedom of movement thru a pediatric motorized wheelchair. and some accessories like  anti-slip restraint belt , wheelchair tray and other adjustable wheelchair safety harness. However, these do not come cheap and so I organized  this fundraiser to bring people together   with good hearts to help each other out to show our love to Esang. 
tetra-amelia syndrome: https://rarediseases.info.nih.gov/diseases/5148/tetra-amelia-syndrome
Co-organizers2
Jasmin Verushka Via Jamias
Organizer
Chicago, IL
Maia Alanna Louise Caletena
Co-organizer