Louis finally has a meaningful diagnosis. Unfortunately the outlook is not good. For those of you who were aware
of his health problem…you may want to hear the new info. His diagnosis is Mitachondrial Disease aka Mita. The list of symptoms is lengthy, and he has it all, including hearing loss lately. It is terminal. There is no cure but there are
treatments. It attacks multiple parts of the body, hence the kidney problem, and other strange afflictions. His
family has a history of Motor Neurone Syndrome (which took his father). This disease is in the same “family”. He is waiting for an appointment with a Neurologist. He is relieved at least to have some clarity on this mysterious
illness he has been experiencing. He is really grateful for all of your support and is making the best of the time he
has left. He is of course planning to play at least one more concert while he has the capacity. And there may be one more album. He is also very much aware of how difficult life is for all of us right now, more than ever, and has
appreciated the support and kindness showed by so many of you.
Since the money raised has already gone towards improving his quality of life, and keeping his stress levels down,
we implore you to continue contributing as and when and if you can.
This campaign is seeking to raise funds for the treatment of a kidney condition that has been affecting Louis Tillett for some time, and more acutely, since the start of 2021, for which Louis has been hospitalised, and is for which he
is receiving ongoing treatment to improve his prognosis and quality of life.
His doctors hope to find alternatives to Dialysis or complete Kidney failure, and his case is not straightforward,
since he does not appear to have any other contributing Health issues. The money would contribute to critical and expensive medications and medical treatments, and would allow him to focus on recovery, if treatment progresses well, or palliative care, when the prognosis inevitably becomes less favourable.
Your donation, to meet the goals set, would enable him to focus on getting well or staying well at this crucial stage of treatment, instead of having to sell the very few assets which provide his most basic comforts, joys and sense of
identity and hope for a future life. This is a time critical campaign where your assistance in the next few months will
make all the difference as to whether he can live and continue to create, or face dialysis and becoming a permanent invalid, leading to the worst case scenario.
Support Act has an alternative campaign for the same purposes as outlined here. However some people trying to
donate there on various devices have found it difficult, so we have opened up this gofundme to assist anyone
having problems there. The benefit of donating over there is that 10% of funds raised go back to Support Act to
help other Artists, and Arts Workers in crisis.
Their link is here….
DonationsSee top donations
- Voula Economou
- Claire Kendal
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