Loud Love and health for Siena

Alicia and Lewis welcomed sweet Siena in the fall of 2020.  This beautiful baby girl was born with a very rare condition called infantile myofibromatosis.  Infantile myofibromatosis, or IM, is a rare tumor that grows in the skin, muscles, bones, and sometimes in the organs of the chest or abdomen. IM tumors are benign, which means they are not cancer and do not spread to other parts of the body. But these tumors may grow large and damage nearby organs.  Siena, in particular, has tumors on every bone which is causing growth issues. Alicia is unable to work her  schedule in film and television due to constant medical appointments for Siena.  Siena is currently undergoing chemotherapy once weekly in hopes of shrinking these tumors.   The medical bills are increasing rapidly and insurance does not cover much of what goes into caring for this sweet little girl.  We wanted to include whoever is receiving this information so you are up to date on the current state of affairs!  If you feel inclined to participate in a donation.....thank you in advance for whatever you contribute!  This will allow Alicia to stay home and care for Siena in going through this healing process.