Lou Gehrig's Disease is not a fun one.
Donation protected
Here I am,.... one day, about 8 years ago, 25F off to "my spot" a half mile away at the Dollar Tree store. However, I never made it that day. It ended up my left wheel motor malfunctioned, and I went in circles till I finally got back to my driveway. Not a good day for Scotty.
I hope to do whatever it takes to do to stay out of a nursing home .
My S.S. check is only 60% of my working wages in 1999. I just cant make ends meet and live with economic dignity minus 40% of my paycheck . I hope to live in my house, with sunshine and grass and birds and trees and my dog, and people who care. and Not a place that smells like urine and poop, with minimum wage "caregivers" who hate their job , and have a tendency to take it out on the helpless patients.
Before ALS I was a full-time Master mechanic living in an beautiful 1800's Victorian home in the historic district of Aurora, IL. I worked and paid my bills. I had it made. Then I noticed one day I was unable to cut my fingernails , then neck & leg cramps. Then as months past, crying & laughing inappropreitly, I finally I lost my job, my house, my dignity, all my savings, and the ability to be independent. the actual amount of money I need is not known, but I will probably need money until the day I die. However $200,000 will get me out of debt and 2 years to live without worry, I need approx. &15,000 per year to keep & maintain my life.
In September of 2019 will mark the 20th anniversary of my A.L.S. diagnosis at the Mayo Clinic. ALS is incurable and 100% fatal. A neuromuscular disease. A slow paralyzing disease. Presently I am without the use of my arms and legs. I use an infrared tracking device to use the computer, a point and click program. I am a quadriplegic and have speech troubles I have essentially outlived my money, and my family's willingness to do fundraising benefits for me. I also believe my church and friends are growing tired of my never ending pity party..
Most people die within 5 years of being diagnosed of ALS. Lou Gehrig lived only 2 yrs. I am very lucky to have survived this long. At present my ALS is relatively stable, and that is, extremely "A" typical of the disease. All I wish to do is stay in my home and have relative happiness without going to a nursing home.
I am proactive and have tried for the last 9 years to go out in my wheelchair & service dog, and collect donations at the local shopping plaza (State Road Plaza at 87th & Ridgeland Oak lawn, il. )....a half mile from my house. It is hard work and I'm tired and cold sometimes, but I do it anyway. To date I have traveled about 1100 miles going back and forth these 9 yrs. that half mile to'"my spot". I am well known to the shoppers at the plaza. I have met many wonderful and generous people in my time there.
Unfortunitly this all came to an end yesterday. The Plaza had gotten a the new owner. The previous owner allowed me to be there. The new owner called the police on me and told me I will be arrested if I collect anymore on her property... (previously had permission from the old owner and the Oak Lawn Police Chief to collect anytime I want to).. i was absolutely dumbfounded by her action, and meanness. but it is what it is.
I have made so many friendships, and had the support of the people who shopped at the plaza, So for now I am asking for help. I will stop this go fund me, if I can find another alternative. I am not a quitter. Thank You, Scott
I hope to do whatever it takes to do to stay out of a nursing home .
My S.S. check is only 60% of my working wages in 1999. I just cant make ends meet and live with economic dignity minus 40% of my paycheck . I hope to live in my house, with sunshine and grass and birds and trees and my dog, and people who care. and Not a place that smells like urine and poop, with minimum wage "caregivers" who hate their job , and have a tendency to take it out on the helpless patients.
Before ALS I was a full-time Master mechanic living in an beautiful 1800's Victorian home in the historic district of Aurora, IL. I worked and paid my bills. I had it made. Then I noticed one day I was unable to cut my fingernails , then neck & leg cramps. Then as months past, crying & laughing inappropreitly, I finally I lost my job, my house, my dignity, all my savings, and the ability to be independent. the actual amount of money I need is not known, but I will probably need money until the day I die. However $200,000 will get me out of debt and 2 years to live without worry, I need approx. &15,000 per year to keep & maintain my life.
In September of 2019 will mark the 20th anniversary of my A.L.S. diagnosis at the Mayo Clinic. ALS is incurable and 100% fatal. A neuromuscular disease. A slow paralyzing disease. Presently I am without the use of my arms and legs. I use an infrared tracking device to use the computer, a point and click program. I am a quadriplegic and have speech troubles I have essentially outlived my money, and my family's willingness to do fundraising benefits for me. I also believe my church and friends are growing tired of my never ending pity party..
Most people die within 5 years of being diagnosed of ALS. Lou Gehrig lived only 2 yrs. I am very lucky to have survived this long. At present my ALS is relatively stable, and that is, extremely "A" typical of the disease. All I wish to do is stay in my home and have relative happiness without going to a nursing home.
I am proactive and have tried for the last 9 years to go out in my wheelchair & service dog, and collect donations at the local shopping plaza (State Road Plaza at 87th & Ridgeland Oak lawn, il. )....a half mile from my house. It is hard work and I'm tired and cold sometimes, but I do it anyway. To date I have traveled about 1100 miles going back and forth these 9 yrs. that half mile to'"my spot". I am well known to the shoppers at the plaza. I have met many wonderful and generous people in my time there.
Unfortunitly this all came to an end yesterday. The Plaza had gotten a the new owner. The previous owner allowed me to be there. The new owner called the police on me and told me I will be arrested if I collect anymore on her property... (previously had permission from the old owner and the Oak Lawn Police Chief to collect anytime I want to).. i was absolutely dumbfounded by her action, and meanness. but it is what it is.
I have made so many friendships, and had the support of the people who shopped at the plaza, So for now I am asking for help. I will stop this go fund me, if I can find another alternative. I am not a quitter. Thank You, Scott
Organizer
Scott Fiala
Organizer
Burbank, IL
