Lorons World

Imagine finding out your son has a brain tumor.

That he would need immediate life threatening surgery called a craniotomy to biopsy the tumor to find out if it's cancerous.

Then being told that it is in fact cancer and a rare one at that that only 3000 people in the world have and its called Chondrosarcoma. And it's location is just as rare.

And that the treatment needed is not available in Australia so your son needs to go to America. But before he can go to America they want to do another craniotomy in Adelaide in the coming weeks to months. 

Now imagine as a parent not being able to go with your son.

Well that's what's happening to our friend Loron and her son Kayden.

We their little "pit crew" community of friends and family have put this page together to help. As we can only do so much.

During the 8 weeks of this tough journey Loron a single mum of four sat by Kayden's bedside from 8am till 8pm and was off work on leave without pay, as she had only been at her current job for a few months prior and hadn't accrued much leave.

Her other three children also stopped attending school and work to be by their brothers side as well for that period of time.

This has had a massive financial impact on the family of five. And will continue to with the journey still ahead for this beautiful family.

Loron wants nothing more than to be with her son during his treatment in America as any mother would want to be when that time comes. But after exhausting all she had to spend the 8 weeks she had off work that's not going to happen without all of our help.

So we as her community of friends are asking for your help.

Instead of buying that coffee evert morning for the week donate that money here, instead of buying lunch on a Friday once a week or that lazy take out dinner donate that money here.

We could tell so many stories of the kind hearted, generous, compassionate human this women is. The literal kind of human to give you the shoes off her feet and shirt off her back.

From giving multiple friends $250 flight center gift cards to do things like fly their children to see them while being ill for a holiday, to flying her friend to see her ill father, to organising meals for a friend who's son was sick and needed to go to Brisbane for treatment and the mum having to stay at Ronald Mcdonald house, as well as donating her entire tax return one year to Heart kids because her friend was raising money and doing Kokoda trail.

To the many children, teenagers and young adults that flow through her house and have done over the last 10 years that all call her Mumma bear. Who she takes in, feeds, cares for and loves like her own, giving driving lessons, food, love and support.

And these are just some of the stories.

This is a women who often works multiple jobs working 6 days a week some days doing 12 to 13 hours on her feet to make sure her children and extended children are cared for.

So please help us help one of the kindest humans we know and donate to help reach the goal of $50k

The money raised will help pay for travel expenses, flights, accommodation, meals, transport, rent, bills, gas, electricity, groceries and everyday living expenses so Loron can be with Kayden during treatment and not have the financial worry of how she'll pay all of the expenses at home while she's away and unable to work.

Below is Kayden's story.

Thank you from the Waddell pit crew!

Lisa, Kelly, Kristin, Misty, Mikayla, Maranda, Rod, Deneal, Lynn, Jean, Emma, James, Connie, Alex and Justin.

https://vt.tiktok.com/ZSRUa8ncG/

On Friday the 17th of June Kayden (20 yrs old) was referred by his optometrist to the emergency department after suffering from 6th nerve palsy.

After MRI's a brain tumor was found in the right cavernous sinus.

On the 22nd of June Kayden went into surgery to get a biopsy of the tumor having a craniotomy on the right side of his skull.

Where two sections of his skull were removed to get access to biopsy the tumor.

On Wednesday the 20th of July 2022 Kayden was diagnosed with Right cavernous sinus brain tumor - Chondrosarcoma

Chondrosarcoma is an extremely rare form of bone cancer that develops in cartilage cells, particularly in the femur, arm, pelvis, knee, and ribs. The exact cause of Chondrosarcoma is unknown. The most common treatment for Chondrosarcoma is the removal of the tumor.

Unfortunately surgeons where only able to remove around 50% of Kayden's tumor during the biopsy procdure due to the tumors location on his internal carotid artery and his 6th crainal nerve.

The Cavernous sinus is a complex and loculated venous space that contains crucial neurovascular structures including the venous plexus, internal carotid artery, periarterial sympathetic nerves, cranial nerves (CN III, IV, V1, V2, VI,) and fibrous tissue.

While chemotherapy or radiation often fail to stop the spread, it is the only other treatment option available after surgery.

Chondrosarcoma is a rare bone and soft tissue cancer that affects only 3,000 people worldwide each year, less than 1% of the population.

Kayden will be going to Darwin for his pre treatment planning and then sent to America in the coming months for Proton therapy.

Proton Therapy is a proven treatment option for cancers and is particularly effective for treating hard-to-reach tumors, tumors near vital organs and critical structures. Proton Treatment Delivers Less Radiation to Healthy tissue reducing chance of side effects.

Benefits of Proton Therapy for Brain Cancer

• Reduces risk of pain, swelling, and/or weakness in the part of the body being treated

• Lowers risk of broken bones and chance of second excisional surgery in the future

• Reduces risk of developing debilitating headaches and seizures

• Maintains executive function, memory, and quality of life