Lori's Fight with Frontotemporal Dementia: A Final Tribute

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Lori's Fight with Frontotemporal Dementia: A Final Tribute

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Please help us give Lori the goodbye she deserves

If you were lucky enough to be loved by Lori, you know there was nothing else like it. She loved with her whole heart. She gave without keeping score. She could walk into a room and somehow make everything, and everyone, more beautiful. She had a rare gift for transforming an ordinary day into a memory you would hold onto forever. Weddings, birthdays, baby showers, fundraisers… Lori poured herself into hundreds of moments for other people, making them feel special, seen, and loved.

Now we are facing the unbearable truth that Lori is dying from Frontotemporal Dementia (FTD). If this disease sounds familiar, it’s because it is the same cruel condition actor Bruce Willis has been diagnosed with. It is a devastating, progressive brain disease that robs people of their personality, language, memory, and independence until there is nothing left to fight with.

This year has been one of heartbreak and chaos. On April 9, Lori went missing. We found her after a car accident in North Carolina. What followed were months of fear, confusion, and devastation. She was in and out of hospitals in both North and South Carolina, each with different stories, different diagnoses, and different “next steps,” while her health kept slipping away. She lost so much precious time because of those mistakes. In one of the most gut-wrenching moments of my life, a hospital discharged her and put her in an Uber to a homeless shelter. That was their plan for a dying woman. We fought to bring her to safety, moving her from place to place as her condition rapidly worsened.

We have drained everything, our energy, our savings, our hope, to take care of her. And now, as her life comes to an end, we are faced with something we never imagined we would have to ask for: help to give her the goodbye she deserves.

Lori gave the very best of herself to everyone she met. She deserves to be remembered with beauty, dignity, and love, the same way she lived. Every dollar you give will go directly toward her final expenses and a memorial worthy of the person she was.

If you cannot give, please share this page and keep her in your prayers. Please help us make sure that the last thing we give Lori matches the extraordinary life she gave to all of us.

From our shattered hearts, thank you.

— Jillian & Family ❤️

Organizer

Jillian Causey
Organizer
Prosperity, SC

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