Lexie lives with your Help!

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$6,520 raised of $150K

Lexie lives with your Help!

From Anthony:    Thank you so much to EVERYONE that’s been keeping us in thoughts and prayers! We appreciate from the bottom of our hearts all the support we’ve received before, through, and after Lexie being hospitalized. There’s simply no words to express the gratitude we feel!!   On July 31st, 2019 My Wife, Alexcia (Lexie) woke up around 1 a.m. feeling extremely weak and unable to move from her neck down. Her initial thought was “I have to go to the ER and they’ll most likely just give me an I.V. then send me home.” EXCEPT this time it wasn't just that… I would like to share her story:    Lexie was born with a severe and rare case of Eczema. She wasn’t tolerant to formulas and after being seen by at least a dozen dr ’s & specialist her blood was tested for allergies. As a toddler she developed severe asthma. Childhood specialist told her mother that Lexie is allergic to everything and she was like ‘the girl in the bubble.’ Rita (my mother-in-law) always tried to treat the symptoms because of how great they were. Lexie had a lot of limitations due to her weak immunity and eczema being so intense. Lexie just wanted to feel normal and be like the other kids. Lexie missed 1st grade and most of the 2nd being hospitalized due to these harsh conditions. Her teachers were always amazed how she was able to maintain good grades despite all her medical and physical limitations.    We know now that Lexie has an AutoImmune disease, we just don't know which one or if it’s multiple disorders in her immune system. Throughout her life she’s had so many symptoms related to MS, CPT-2, Lupus, Endometriosis, and many more.  She’s been to countless doctors, specialists, emergency rooms, hospitals, testings and they all say that she’s a rare case and they don’t know what to do. Still to this date, she has yet to be diagnosed.    Fast forward to May 2019, we end up in Lexie’s allergist office where she takes more tests, one of them being the “patch test” and another for her lungs. The results come back and show her being severely allergic to everything she was tested for and her airways were extremely constricted and inflamed. We met with her allergist to discuss her tests and he stated that she has one of the worst cases he’s seen and it’s a miracle that she’s been able to live this long in her state. He recommends that she begins immunotherapy treatment (a 5yr plan) as soon as possible along with many breathing treatments and an Air purifier that must remain ‘on’ at all times to give her life a fighting chance. Her health was still declining, so she began immunotherapy treatment a couple weeks later with the hope that it can really help her.    Early July 2019, Rita (Lexie’s mom) was driving Lexie and our kids back home. On their drive back Lexie suddenly stopped breathing and as Rita reached over to grab her inhaler and epi shot, she hit another car. Thankfully no one was hurt. Her symptoms/episodes have been happening more often and more aggressive.    July 31st now at the E.R. she’s losing feeling by the minute. We never came to grips with the idea she might never walk again, it was incomprehensible. From there she’s transferred to St. Mary’s, a trauma 2 hospital for further testing and evaluation. Countless bloodwork, CT Scan, MRI, and Lumbar Puncture were done and after a week in the hospital, she’s still unable to walk or stand and doctors have no diagnosis.     She’s discharged from the hospital on a wheelchair, which is something that was completely new to us and extremely difficult to adjust to, due to the fact that our apartment doesn’t allow her wheelchair to move over the carpet, it’s a small space so the wheelchair does not fit in the hallway and from room to room. I currently have to physically carry her from room to room. Lexie being bedridden is almost impossible especially with having 5 children in our small apartment. The physical therapy is done at home which makes it that much harder. When physical therapist come, because of the small space and limited resources it’s challenging to get her where she needs to be. Our apartment as grateful as we are for it, is hindering her in many ways.       We are asking for donations to help us get a home. We had no idea, the place we live in would set before us many challenges. We are in desperate need of a home that would be suitable for a wheelchair and many other medical modifications that would need to be installed. Her health declining so fast in a matter of days has definitely burdened our family as a whole and has added more than we already had on our plate. Lexie is the glue of our family and this latest event has crushed the heart of our family. Lexie is invaluable to me, her kids, and our whole family and friends! Her health is our #1 priority. The doctors and specialists have told us multiple times that her health won't ever be better than 80% at best, and all these treatments, therapy sessions, medications, better environment etc. will possibly give her a chance to live longer.      I’ve watched her struggle with her health since I met her in middle school, and thinking back to all the days she missed school because of her health, it’s never been more heartbreaking than now. It’s the MOST helpless feeling I’ve ever felt because I feel like I’m watching her slowly die right before my eyes and there’s nothing I can do about it. Even though I talk myself up daily to stay strong and everything will turn out okay, it’s hard to ignore the reality that any day I can lose my best friend, the mother of my 5 kids, and the love of my life.     All I can ask of you reading this is ANY kind of help, big or small, and that will provide her with a HUGE opportunity to have a chance to at least keep fighting for a longer life. We’re both 28 and she doesn’t deserve to keep struggling and suffering. If there was any possible way I can switch places with her, I would do it in a heartbeat with no questions asked! She has so much to offer to the world and the dedication that flows in her DNA will not stop fighting and will always give back because that’s just how she’s wired, selfless and will not hesitate to put someone before her. Your donation of ANY amount will go such a long way towards providing her with a home suitable for her medical needs, medications and therapy sessions when no longer covered by insurance, and even any kind of in home help when needed. Thank you from the bottom of our hearts for your all your prayers, support, the opportunity you’re giving her and for taking the time to read this!!!  -Anthony From the Fundraising Team: First we would like to thank you and let you know that we are believing God for not only Lexies breakthrough but also those who have sowed in and showed support. When you donate ANY amount big or small, it’s leaving your impact on this family in a HUGE way, YOU can change the outcome so thank you! If you would like to be a positive influence SHARE the link below: https://www.gofundme.com/f/longlivelexie Please use hashtag #LexieLives to show your continued support with all shares and comments! This allows us to show Lexie and her family everyone's support and kind words thank you!  If you have pictures with Lexie you want to share please send them to: [email redacted] Lexie would love to see your pictures and we would like to use them for our next update!! ********************************************* Primero, queremos agradecerle y hacerle saber que estamos creyendo en Dios no solo por el avance de Lexies sino también por aquellos que sembraron y mostraron su apoyo. Cuando dona CUALQUIER cantidad grande o pequeña, está dejando su impacto en esta familia de una ENORME forma, ¡USTED puede cambiar el resultado, así que gracias! Si desea ser una influencia positiva COMPARTA el siguiente enlace: https://www.gofundme.com/f/longlivelexie

Co-organizers3

Rita Lara
Organizer
Cerritos, CA
Anthony Brenes
Beneficiary
Monique Ybarra
Co-organizer
Lina Ligorria
Co-organizer
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